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<classification authority="sudocs">GA 1.13:GAO-08-529</classification>
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 <subject>Accountability</subject>
 <subject>Community health services</subject>
 <subject>Data collection</subject>
 <subject>Data integrity</subject>
 <subject>Developmental disabilities</subject>
 <subject>Health and behavioral care standards</subject>
 <subject>Health care services</subject>
 <subject>Home health care services</subject>
 <subject>Investigations by federal agencies</subject>
 <subject>Medicaid</subject>
 <subject>Mortality</subject>
 <subject>Persons with disabilities</subject>
 <subject>Quality of care</subject>
 <subject>Reporting requirements</subject>
 <subject>Risk assessment</subject>
 <subject>Risk management</subject>
 <subject>State-administered programs</subject>
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 <subject>Waivers</subject>
 <subject>Wrongful death</subject>
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<titleInfo>
 <title>Medicaid Home and Community-Based Waivers: CMS Should Encourage States to Conduct Mortality Reviews for Individuals with Developmental Disabilities</title>
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<abstract>Deaths of individuals with developmental disabilities due to poor
quality of care have been highlighted in the media. Prior GAO	 
work has raised concerns about inadequate safeguards for such	 
individuals receiving care through state Medicaid home and	 
community-based services (HCBS) waivers. CMS approves and	 
oversees these waivers. Safeguards include the review of, and	 
follow-up action to, critical incidents--events that harm or have
the potential to harm waiver beneficiaries. GAO was asked to	 
examine the extent to which states (1) include, as a critical	 
incident, deaths among individuals with developmental		 
disabilities in waiver programs; (2) have basic components in	 
place to review such deaths; and (3) have adopted additional	 
components to review deaths. GAO interviewed state developmental 
disabilities agency officials and external stakeholders in 14	 
states, e-mailed a survey to 35 states and D.C., interviewed	 
experts, and reviewed documents.</abstract>
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 <topic>Accountability</topic>
 <topic>Community health services</topic>
 <topic>Data collection</topic>
 <topic>Data integrity</topic>
 <topic>Developmental disabilities</topic>
 <topic>Health and behavioral care standards</topic>
 <topic>Health care services</topic>
 <topic>Home health care services</topic>
 <topic>Investigations by federal agencies</topic>
 <topic>Medicaid</topic>
 <topic>Mortality</topic>
 <topic>Persons with disabilities</topic>
 <topic>Quality of care</topic>
 <topic>Reporting requirements</topic>
 <topic>Risk assessment</topic>
 <topic>Risk management</topic>
 <topic>State-administered programs</topic>
 <topic>Strategic planning</topic>
 <topic>Waivers</topic>
 <topic>Wrongful death</topic>
 <topic>Government agency oversight</topic>
 <topic>Quality of health care</topic>
 <topic>Standards (health care)</topic>
 <topic>Transparency</topic>
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  <title>United States Statutes at Large</title>
  <partNumber>Volume 89 Page 486</partNumber>
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 <identifier type="Statute citation">89 Stat. 486</identifier>
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  <title>United States Statutes at Large</title>
  <partNumber>Volume 120 Page 4</partNumber>
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 <identifier type="Statute citation">120 Stat. 4</identifier>
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 <titleInfo>
  <title>United States Public Law 103 (94th Congress)</title>
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 <identifier type="public law citation">Public Law 94-103</identifier>
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  <title>United States Public Law 171 (109th Congress)</title>
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