United States Government Publishing Office publisher pbl distributor dst United States Government Accountability Office author aut Government Organization text government publication eng GAOREPORTS Legislative Agency Publications gao legislative 2010-08-12 U.S. Government Printing Office 2003-03-17 monographic deposited born digital 48 p. GA 1.13:GAO-03-449 https://www.govinfo.gov/app/details/GAOREPORTS-GAO-03-449 P0b002ee18038cd8f f:d03449 DGPO 2010-08-12 2011-03-24 GAOREPORTS-GAO-03-449 machine generated eng fdlp REPORT GAOREPORTS-GAO-03-449 GAO-03-449 Disease detection or diagnosis Federal/state relations Health care programs Health care services Program evaluation Quality assurance State-administered programs Children CDC Newborn Screening Quality Assurance Program Other Written Product A06334 Each year state newborn screening programs test 4 million newborns for disorders that require early detection and treatment to prevent serious illness or death. GAO was asked to provide the Congress with information on the variations among state newborn screening programs, including information on criteria considered in selecting disorders to include in state programs, education for parents and providers about newborn screening programs, and programs' expenditures and funding sources. To collect this information, GAO surveyed newborn screening programs for genetic and metabolic disorders in all 50 states and the District of Columbia. GAO was also asked to provide information on efforts by the Department of Health and Human Services (HHS) and states to evaluate the quality of newborn screening programs, state laws and regulations that address parental consent for newborn screening, and state laws and regulations that address confidentiality issues. https://www.govinfo.gov/content/pkg/GAOREPORTS-GAO-03-449/html/GAOREPORTS-GAO-03-449.htm https://www.govinfo.gov/content/pkg/GAOREPORTS-GAO-03-449/pdf/GAOREPORTS-GAO-03-449.pdf GAO-03-449 https://www.govinfo.gov/app/details/GAOREPORTS-GAO-03-449 Other Written Product GAO-03-449; Newborn Screening: Characteristics of State Programs; Disease detection or diagnosis Federal/state relations Health care programs Health care services Program evaluation Quality assurance State-administered programs Children CDC Newborn Screening Quality Assurance Program Volume 102 Page 2903 102 Stat. 2903 Volume 110 Page 1939 110 Stat. 1939 Volume 114 Page 1101 114 Stat. 1101 Public Law 100-578 Public Law 104-191 Public Law 106-310