United States Statutes at Large, Volume 124, 111th Congress, 2nd Session

[United States Statutes at Large, Volume 124, 111th Congress, 2nd Session]
[From the U.S. Government Publishing Office, www.gpo.gov]


Public Law 111-375
111th Congress

An Act


 
To establish the National Alzheimer's Project. <>

Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled, <>
SECTION 1. <>  SHORT TITLE.

This Act may be cited as the ``National Alzheimer's Project Act''.
SEC. 2. <>  THE NATIONAL ALZHEIMER'S PROJECT.

(a) Definition of Alzheimer's.--In this Act, the term
``Alzheimer's'' means Alzheimer's disease and related dementias.
(b) Establishment.--There is established in the Office of the
Secretary of Health and Human Services the National Alzheimer's Project
(referred to in this Act as the ``Project'').
(c) Purpose of the Project.--The Secretary of Health and Human
Services, or the Secretary's designee, shall--
(1) be responsible for the creation and maintenance of an
integrated national plan to overcome Alzheimer's;
(2) provide information and coordination of Alzheimer's
research and services across all Federal agencies;
(3) accelerate the development of treatments that would
prevent, halt, or reverse the course of Alzheimer's;
(4) improve the--
(A) early diagnosis of Alzheimer's disease; and
(B) coordination of the care and treatment of
citizens with Alzheimer's;
(5) ensure the inclusion of ethnic and racial populations at
higher risk for Alzheimer's or least likely to receive care, in
clinical, research, and service efforts with the purpose of
decreasing health disparities in Alzheimer's; and
(6) coordinate with international bodies to integrate and
inform the fight against Alzheimer's globally.

(d) Duties of the Secretary.--
(1) In general.--The Secretary of Health and Human Services,
or the Secretary's designee, shall--
(A) oversee the creation and updating of the
national plan described in paragraph (2); and
(B) use discretionary authority to evaluate all
Federal programs around Alzheimer's, including budget
requests and approvals.
(2) National plan. <> --The Secretary of
Health and Human Services, or the Secretary's designee, shall
carry out an annual assessment of the Nation's progress in
preparing for the escalating burden of Alzheimer's, including
both implementation

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steps and recommendations for priority actions based on the
assessment.

(e) <>  Advisory Council.--
(1) In general.--There is established an Advisory Council on
Alzheimer's Research, Care, and Services (referred to in this
Act as the ``Advisory Council'').
(2) Membership.--
(A) Federal members.--The Advisory Council shall be
comprised of the following experts:
(i) A designee of the Centers for Disease
Control and Prevention.
(ii) A designee of the Administration on
Aging.
(iii) A designee of the Centers for Medicare &
Medicaid Services.
(iv) A designee of the Indian Health Service.
(v) A designee of the Office of the Director
of the National Institutes of Health.
(vi) The Surgeon General.
(vii) A designee of the National Science
Foundation.
(viii) A designee of the Department of
Veterans Affairs.
(ix) A designee of the Food and Drug
Administration.
(x) A designee of the Agency for Healthcare
Research and Quality.
(B) Non-federal members.--In addition to the members
outlined in subparagraph (A), the Advisory Council shall
include 12 expert members from outside the Federal
Government, which shall include--
(i) 2 Alzheimer's patient advocates;
(ii) 2 Alzheimer's caregivers;
(iii) 2 health care providers;
(iv) 2 representatives of State health
departments;
(v) 2 researchers with Alzheimer's-related
expertise in basic, translational, clinical, or
drug development science; and
(vi) 2 voluntary health association
representatives, including a national Alzheimer's
disease organization that has demonstrated
experience in research, care, and patient
services, and a State-based advocacy organization
that provides services to families and
professionals, including information and referral,
support groups, care consultation, education, and
safety services.
(3) Meetings. <> --The Advisory Council
shall meet quarterly and such meetings shall be open to the
public.
(4) Advice.--The Advisory Council shall advise the Secretary
of Health and Human Services, or the Secretary's designee.
(5) Annual report.--The Advisory Council shall provide to
the Secretary of Health and Human Services, or the Secretary's
designee and Congress--
(A) an initial evaluation of all federally funded
efforts in Alzheimer's research, clinical care, and
institutional-, home-, and community-based programs and
their outcomes;

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(B) initial recommendations for priority actions to
expand, eliminate, coordinate, or condense programs
based on the program's performance, mission, and
purpose;
(C) initial recommendations to--
(i) reduce the financial impact of Alzheimer's
on--
(I) Medicare and other federally
funded programs; and
(II) families living with
Alzheimer's disease; and
(ii) improve health outcomes; and
(D) annually thereafter, an evaluation of the
implementation, including outcomes, of the
recommendations, including priorities if necessary,
through an updated national plan under subsection
(d)(2).
(6) Termination.--The Advisory Council shall terminate on
December 31, 2025.

(f) Data Sharing.--Agencies both within the Department of Health and
Human Services and outside of the Department that have data relating to
Alzheimer's shall share such data with the Secretary of Health and Human
Services, or the Secretary's designee, to enable the Secretary, or the
Secretary's designee, to complete the report described in subsection
(g).
(g) Annual Report.--The Secretary of Health and Human Services, or
the Secretary's designee, shall submit to Congress--
(1) an annual report that includes an evaluation of all
federally funded efforts in Alzheimer's research, clinical care,
and institutional-, home-, and community-based programs and
their outcomes;
(2) an evaluation of all federally funded programs based on
program performance, mission, and purpose related to Alzheimer's
disease;
(3) recommendations for--
(A) priority actions based on the evaluation
conducted by the Secretary and the Advisory Council to--
(i) reduce the financial impact of Alzheimer's
on--
(I) Medicare and other federally
funded programs; and
(II) families living with
Alzheimer's disease; and
(ii) improve health outcomes;
(B) implementation steps; and
(C) priority actions to improve the prevention,
diagnosis, treatment, care, institutional-, home-, and
community-based programs of Alzheimer's disease for
individuals with Alzheimer's disease and their
caregivers; and
(4) an annually updated national plan.

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(h) Sunset.--The Project shall expire on December 31, 2025.

Approved January 4, 2011.

LEGISLATIVE HISTORY--S. 3036:
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CONGRESSIONAL RECORD, Vol. 156 (2010):
Dec. 8, considered and passed Senate.
Dec. 15, considered and passed House.