    [United States Statutes at Large, Volume 124, 111th Congress, 2nd Session]
    [From the U.S. Government Publishing Office, www.gpo.gov]

    Public Law 111-375
    111th Congress

    An Act

    To establish the National Alzheimer's Project. <>

    Be it enacted by the Senate and House of Representatives of the
    United States of America in Congress assembled, <>
    SECTION 1. <>  SHORT TITLE.

    This Act may be cited as the ``National Alzheimer's Project Act''.
    SEC. 2. <>  THE NATIONAL ALZHEIMER'S PROJECT.

    (a) Definition of Alzheimer's.--In this Act, the term
    ``Alzheimer's'' means Alzheimer's disease and related dementias.
    (b) Establishment.--There is established in the Office of the
    Secretary of Health and Human Services the National Alzheimer's Project
    (referred to in this Act as the ``Project'').
    (c) Purpose of the Project.--The Secretary of Health and Human
    Services, or the Secretary's designee, shall--
    (1) be responsible for the creation and maintenance of an
    integrated national plan to overcome Alzheimer's;
    (2) provide information and coordination of Alzheimer's
    research and services across all Federal agencies;
    (3) accelerate the development of treatments that would
    prevent, halt, or reverse the course of Alzheimer's;
    (4) improve the--
    (A) early diagnosis of Alzheimer's disease; and
    (B) coordination of the care and treatment of
    citizens with Alzheimer's;
    (5) ensure the inclusion of ethnic and racial populations at
    higher risk for Alzheimer's or least likely to receive care, in
    clinical, research, and service efforts with the purpose of
    decreasing health disparities in Alzheimer's; and
    (6) coordinate with international bodies to integrate and
    inform the fight against Alzheimer's globally.

    (d) Duties of the Secretary.--
    (1) In general.--The Secretary of Health and Human Services,
    or the Secretary's designee, shall--
    (A) oversee the creation and updating of the
    national plan described in paragraph (2); and
    (B) use discretionary authority to evaluate all
    Federal programs around Alzheimer's, including budget
    requests and approvals.
    (2) National plan. <> --The Secretary of
    Health and Human Services, or the Secretary's designee, shall
    carry out an annual assessment of the Nation's progress in
    preparing for the escalating burden of Alzheimer's, including
    both implementation

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    steps and recommendations for priority actions based on the
    assessment.

    (e) <>  Advisory Council.--
    (1) In general.--There is established an Advisory Council on
    Alzheimer's Research, Care, and Services (referred to in this
    Act as the ``Advisory Council'').
    (2) Membership.--
    (A) Federal members.--The Advisory Council shall be
    comprised of the following experts:
    (i) A designee of the Centers for Disease
    Control and Prevention.
    (ii) A designee of the Administration on
    Aging.
    (iii) A designee of the Centers for Medicare &
    Medicaid Services.
    (iv) A designee of the Indian Health Service.
    (v) A designee of the Office of the Director
    of the National Institutes of Health.
    (vi) The Surgeon General.
    (vii) A designee of the National Science
    Foundation.
    (viii) A designee of the Department of
    Veterans Affairs.
    (ix) A designee of the Food and Drug
    Administration.
    (x) A designee of the Agency for Healthcare
    Research and Quality.
    (B) Non-federal members.--In addition to the members
    outlined in subparagraph (A), the Advisory Council shall
    include 12 expert members from outside the Federal
    Government, which shall include--
    (i) 2 Alzheimer's patient advocates;
    (ii) 2 Alzheimer's caregivers;
    (iii) 2 health care providers;
    (iv) 2 representatives of State health
    departments;
    (v) 2 researchers with Alzheimer's-related
    expertise in basic, translational, clinical, or
    drug development science; and
    (vi) 2 voluntary health association
    representatives, including a national Alzheimer's
    disease organization that has demonstrated
    experience in research, care, and patient
    services, and a State-based advocacy organization
    that provides services to families and
    professionals, including information and referral,
    support groups, care consultation, education, and
    safety services.
    (3) Meetings. <> --The Advisory Council
    shall meet quarterly and such meetings shall be open to the
    public.
    (4) Advice.--The Advisory Council shall advise the Secretary
    of Health and Human Services, or the Secretary's designee.
    (5) Annual report.--The Advisory Council shall provide to
    the Secretary of Health and Human Services, or the Secretary's
    designee and Congress--
    (A) an initial evaluation of all federally funded
    efforts in Alzheimer's research, clinical care, and
    institutional-, home-, and community-based programs and
    their outcomes;

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    (B) initial recommendations for priority actions to
    expand, eliminate, coordinate, or condense programs
    based on the program's performance, mission, and
    purpose;
    (C) initial recommendations to--
    (i) reduce the financial impact of Alzheimer's
    on--
    (I) Medicare and other federally
    funded programs; and
    (II) families living with
    Alzheimer's disease; and
    (ii) improve health outcomes; and
    (D) annually thereafter, an evaluation of the
    implementation, including outcomes, of the
    recommendations, including priorities if necessary,
    through an updated national plan under subsection
    (d)(2).
    (6) Termination.--The Advisory Council shall terminate on
    December 31, 2025.

    (f) Data Sharing.--Agencies both within the Department of Health and
    Human Services and outside of the Department that have data relating to
    Alzheimer's shall share such data with the Secretary of Health and Human
    Services, or the Secretary's designee, to enable the Secretary, or the
    Secretary's designee, to complete the report described in subsection
    (g).
    (g) Annual Report.--The Secretary of Health and Human Services, or
    the Secretary's designee, shall submit to Congress--
    (1) an annual report that includes an evaluation of all
    federally funded efforts in Alzheimer's research, clinical care,
    and institutional-, home-, and community-based programs and
    their outcomes;
    (2) an evaluation of all federally funded programs based on
    program performance, mission, and purpose related to Alzheimer's
    disease;
    (3) recommendations for--
    (A) priority actions based on the evaluation
    conducted by the Secretary and the Advisory Council to--
    (i) reduce the financial impact of Alzheimer's
    on--
    (I) Medicare and other federally
    funded programs; and
    (II) families living with
    Alzheimer's disease; and
    (ii) improve health outcomes;
    (B) implementation steps; and
    (C) priority actions to improve the prevention,
    diagnosis, treatment, care, institutional-, home-, and
    community-based programs of Alzheimer's disease for
    individuals with Alzheimer's disease and their
    caregivers; and
    (4) an annually updated national plan.

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    (h) Sunset.--The Project shall expire on December 31, 2025.

    Approved January 4, 2011.

    LEGISLATIVE HISTORY--S. 3036:
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    CONGRESSIONAL RECORD, Vol. 156 (2010):
    Dec. 8, considered and passed Senate.
    Dec. 15, considered and passed House.