[United States Statutes at Large, Volume 120, 109th Congress, 2nd Session]
[From the U.S. Government Publishing Office, www.gpo.gov]

 
NOTE: May 24, 2006 -  [H.Con.Res.357]  NATIONAL CYSTIC FIBROSIS
AWARENESS MONTH--SUPPORT

Whereas cystic fibrosis is one of the most common life-threatening
genetic diseases in the United States and one for which there is no
known cure;

Whereas the average life expectancy of an individual with cystic
fibrosis is 35 years, an improvement from a life expectancy of 10
years in the 1960s, but still unacceptably short;

Whereas approximately 30,000 people in the United States have cystic
fibrosis, more than half of them children;

Whereas one of every 3,500 babies born in the United States is born with
cystic fibrosis;

Whereas more than 10,000,000 Americans are unknowing, symptom-free
carriers of the cystic fibrosis gene;

Whereas the Centers for Disease Control and Prevention recommends that
all States consider newborn screening for cystic fibrosis;

Whereas the Cystic Fibrosis Foundation urges all States to implement
newborn screening for cystic fibrosis to facilitate early diagnosis
and treatment which improves health and longevity;

Whereas prompt, aggressive treatment of the symptoms of cystic fibrosis
can extend the lives of people who have the disease;

Whereas recent advances in cystic fibrosis research have produced
promising leads in gene, protein, and drug therapies beneficial to
people who have the disease;

Whereas innovative research is progressing faster and is being conducted
more aggressively than ever before, due, in part, to the Cystic
Fibrosis Foundation's establishment of a model clinical trials
network;

Whereas although the Cystic Fibrosis Foundation continues to fund a
research pipeline for more than two dozen potential therapies and
funds a nationwide network of care centers that extend the length
and quality of life for people with cystic fibrosis, lives continue
to be lost to this disease every day;

Whereas education of the public about cystic fibrosis, including the
symptoms of the disease, increases knowledge and understanding of
cystic fibrosis and promotes early diagnosis; and

Whereas the Cystic Fibrosis Foundation will conduct activities to honor
National Cystic Fibrosis Awareness Month in May, 2006: Now,
therefore, be it

Resolved by the House of Representatives (the Senate concurring),
That the Congress--

[[Page 3726]]
120 STAT. 3726

(1) honors the goals and ideals of National Cystic Fibrosis
Awareness Month;
(2) promotes further public awareness and understanding of
cystic fibrosis;
(3) advocates for increased support for people who have
cystic fibrosis and their families;
(4) encourages early diagnosis and access to quality care
for people with cystic fibrosis to improve the quality of their
lives; and
(5) supports research to find a cure for cystic fibrosis by
fostering an enhanced research program through a strong Federal
commitment and expanded public-private partnerships.

Agreed to May 24, 2006.