[Federal Register Volume 84, Number 164 (Friday, August 23, 2019)]
[Notices]
[Pages 44311-44312]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2019-18208]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Centers for Disease Control and Prevention
[30Day-19-0469]
Agency Forms Undergoing Paperwork Reduction Act Review
In accordance with the Paperwork Reduction Act of 1995, the Centers
for Disease Control and Prevention (CDC) has submitted the information
collection request titled National Program of Cancer Registries Cancer
Surveillance System to the Office of Management and Budget (OMB) for
review and approval. CDC previously published a ``Proposed Data
Collection Submitted for Public Comment and Recommendations'' notice on
May 30, 2019 to obtain comments from the public and affected agencies.
CDC did not receive comments related to the previous notice. This
notice serves to allow an additional 30 days for public and affected
agency comments.
CDC will accept all comments for this proposed information
collection project. The Office of Management and Budget is particularly
interested in comments that:
(a) Evaluate whether the proposed collection of information is
necessary for the proper performance of the functions of the agency,
including whether the information will have practical utility;
(b) Evaluate the accuracy of the agencies estimate of the burden of
the proposed collection of information, including the validity of the
methodology and assumptions used;
(c) Enhance the quality, utility, and clarity of the information to
be collected;
(d) Minimize the burden of the collection of information on those
who are to respond, including, through the use of appropriate
automated, electronic, mechanical, or other technological collection
techniques or other forms of information technology, e.g., permitting
electronic submission of responses; and
(e) Assess information collection costs.
To request additional information on the proposed project or to
obtain a copy of the information collection plan and instruments, call
(404) 639-7570 or send an email to [email protected]. Direct written comments
and/or suggestions regarding the items contained in this notice to the
Attention: CDC Desk Officer, Office of Management and Budget, 725 17th
Street NW, Washington, DC 20503 or by fax to (202) 395-5806. Provide
written comments within 30 days of notice publication.
Proposed Project
National Program of Cancer Registries Cancer Surveillance System
(NPCR CSS) (OMB Control No. 0920-0469, Exp. 6/30/2019)--Reinstatement
with Change--National Center for Chronic Disease Prevention and Health
Promotion (NCCDPHP), Centers for Disease Control and Prevention (CDC).
Background and Brief Description
In 2015, the most recent year for which complete information is
available, almost 596,000 people died of cancer and more than 1.6
million were diagnosed with cancer. It is estimated that 15.8 million
Americans are currently alive with a history of cancer. In the U.S.,
state/territory-based cancer registries are the only method for
systematically collecting and reporting population based information
about cancer incidence and outcomes such as survival. These data are
used to measure the changing incidence and burden of each cancer;
identify populations at increased or increasing risk; target preventive
measures; and measure the success or failure of cancer control efforts
in the U.S.
In 1992, Congress passed the Cancer Registries Amendment Act which
established the National Program of Cancer Registries (NPCR). The NPCR
provides support for state/territory-based cancer registries that
collect, manage and analyze data about cancer cases. The state/
territory-based cancer registries report information to CDC through the
National Program of Cancer Registries Cancer Surveillance System (NPCR
CSS), (OMB No. 0920-0469). CDC plans to request OMB approval to
reinstate collecting this information for three years. Data definitions
will be updated to reflect changes in national standards for cancer
diagnosis and coding. The number of respondents has been updated to
reflect the increased number of states/territories supported by CDC,
but the burden per respondent will not change.
The NPCR CSS allows CDC to collect, aggregate, evaluate, and
disseminate cancer incidence data at the national level. The NPCR CSS
is the primary source of information for United States Cancer
Statistics (USCS), which CDC has published annually since 2002. The
latest USCS report published in 2018 provided cancer statistics for
100% of the United States population from all cancer registries in the
United States. Prior to the publication of USCS, cancer incidence data
at the national level were available for only 14% of the population of
the United States.
The NPCR CSS also allows CDC to monitor cancer trends over time,
describe geographic variation in cancer incidence throughout the
country, and provide incidence data on racial/ethnic populations and
rare cancers. These activities and analyses further support CDC's
planning and evaluation efforts for state and national cancer control
and prevention. In addition, datasets can be made available for
secondary analysis.
Respondents are NPCR-supported central cancer registries (CCR) in
46 U.S. states, three territories, and the District of Columbia. Fifty
CCRs submit data elements specified for the Standard NPCR CSS Report.
Each CCR is asked to transmit two data files to CDC per year. The first
NPCR CSS Standard file, submitted in January, is a preliminary report
consisting of one year of data for the most recent year of available
data. CDC evaluates the preliminary data for completeness and quality
and provides a report back to the CCR. The second NPCR CSS Standard
file, submitted by November, contains cumulative cancer incidence data
from the first diagnosis year for which the cancer registry collected
data with the assistance of NPCR funds (e.g., 1995) through 12 months
past the close of the most recent diagnosis year (e.g., 2016). The
cumulative file is used for analysis and reporting.
The burden for each file transmission is estimated at two hours per
response. Because cancer incidence data are already collected and
aggregated at the state level the additional burden of reporting the
information to CDC is small. All information is transmitted to CDC
electronically. Participation is required as a condition of the
cooperative agreement with CDC. There are no costs to respondents other
than their time. The total estimated annualized burden hours are 200
for the Standard NPCR CSS Report.
[[Page 44312]]
Estimated Annualized Burden Hours
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Number of Average burden
Type of respondents Form name Number of responses per per response
respondents respondent (in hours)
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Central Cancer Registries in States, Standard NPCR CSS Report 50 2 2
Territories, and the District of
Columbia.
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Jeffrey M. Zirger,
Lead, Information Collection Review Office, Office of Scientific
Integrity, Office of Science, Centers for Disease Control and
Prevention.
[FR Doc. 2019-18208 Filed 8-22-19; 8:45 am]
BILLING CODE 4163-18-P