[Federal Register Volume 84, Number 24 (Tuesday, February 5, 2019)]
[Notices]
[Page 1755]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2019-01018]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

National Institutes of Health


Office of the Secretary; Notice of Meeting

    Pursuant to section 10(d) of the Federal Advisory Committee Act, as 
amended, notice is hereby given of a meeting of the Muscular Dystrophy 
Coordinating Committee (MDCC).
    The meeting will be open to the public and accessible by 
teleconference. Participation is limited to space available. 
Individuals who plan to participate and need special assistance, such 
as reasonable accommodations, should notify the Contact Person listed 
below in advance of the meeting.

    Name of Committee: Muscular Dystrophy Coordinating Committee.
    Type of meeting: Open Meeting.
    Date: March 20, 2019.
    Time: 8:30 a.m. to 4:30 p.m. *Eastern Time*--Approximate end 
time.
    Agenda: The purpose of this meeting is to bring together 
committee members, representing government agencies, patient 
advocacy groups, other voluntary health organizations, and patients 
and their families to update one another on progress relevant to the 
Action Plan for the Muscular Dystrophies and to coordinate 
activities and discuss gaps and opportunities leading to better 
understanding of the muscular dystrophies, advances in treatments, 
and improvements in patients' and their families' lives. Prior to 
the meeting, an agenda will be posted to the MDCC meeting 
registration website: https://meetings.ninds.nih.gov/?id=21649.
    Registration: To register, please go to: https://meetings.ninds.nih.gov/?id=21649.
    Webcast Live: For those not able to attend in person, this 
meeting will be webcast at: http://videocast.nih.gov/.
    Place: National Institutes of Health, Neuroscience Center (NSC) 
Building, 6001 Executive Boulevard, Conference Room C/D, Rockville, 
MD 20852.
    Contact Person: Glen H. Nuckolls, Ph.D., Executive Secretary, 
Muscular Dystrophy Coordinating Committee, National Institute of 
Neurological Disorders and Stroke, NIH, 6001 Executive Boulevard, 
NSC 2203, Bethesda, MD 20892, (301) 496-5745, [email protected].

    Any member of the public interested in presenting oral comments 
to the committee may notify the Contact Person listed on this notice 
at least 10 days in advance of the meeting. Interested individuals 
and representatives of organizations may submit a letter of intent, 
a brief description of the organization represented, and a short 
description of the oral presentation. Only one representative of an 
organization may be allowed to present oral comments and if accepted 
by the committee, presentations may be limited to five minutes. Both 
printed and electronic copies are requested for the record. In 
addition, any interested person may file written comments with the 
committee by forwarding their statement to the Contact Person listed 
on this notice. The statement should include the name, address, 
telephone number and when applicable, the business or professional 
affiliation of the interested person.
    All visitors must go through a security check at the building 
entrance to receive a visitor's badge. A government issued photo ID 
is required. Further information can be found at the registration 
website: https://meetings.ninds.nih.gov/meetings/MDCCMarch2019/.
    More information can be found on the Muscular Dystrophy 
Coordinating Committee home page: https://mdcc.nih.gov/.

(Catalogue of Federal Domestic Assistance Program Nos. 93.853, 
Clinical Research Related to Neurological Disorders; 93.854, 
Biological Basis Research in the Neurosciences, National Institutes 
of Health, HHS)

    Dated: January 30, 2019.
Sylvia L. Neal,
Program Analyst, Office of Federal Advisory Committee Policy.
[FR Doc. 2019-01018 Filed 2-4-19; 8:45 am]
 BILLING CODE 4140-01-P