[Federal Register Volume 82, Number 151 (Tuesday, August 8, 2017)]
[Notices]
[Pages 37103-37104]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2017-16686]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Agency Information Collection Activities: Proposed Collection: 
Public Comment Request Information Collection Request Title: Office of 
Patient Advocacy/Be The Match[supreg] Patient Services Survey, OMB No. 
0906-0004, Revision

AGENCY: Health Resources and Services Administration (HRSA), Department 
of Health and Human Services.

ACTION: Notice.

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SUMMARY: In compliance with the requirement for opportunity for public 
comment on proposed data collection projects of the Paperwork Reduction 
Act of 1995, HRSA announces plans to submit an Information Collection 
Request (ICR), described below, to the Office of Management and Budget 
(OMB). Prior to submitting the ICR to OMB, HRSA seeks comments from the 
public regarding the burden estimate, below, or any other aspect of the 
ICR.

DATES: Comments on this ICR must be received no later than October 10, 
2017.

ADDRESSES: Submit your comments to [email protected] or mail the HRSA 
Information Collection Clearance Officer, Room 14N39, 5600 Fishers 
Lane, Rockville, MD 20857.

FOR FURTHER INFORMATION CONTACT: To request more information on the 
proposed project or to obtain a copy of the data collection plans and 
draft instruments, email [email protected] or call the HRSA 
Information Collection Clearance Officer at (301) 443-1984.

SUPPLEMENTARY INFORMATION: When submitting comments or requesting 
information, please include the information request collection title 
for reference, in compliance with Section 3506(c)(2)(A) of the 
Paperwork Reduction Act of 1995.
    Information Collection Request Title: Office of Patient Advocacy/Be 
The Match[supreg] Patient Services Survey, OMB No. 0906-0004--Revision.
    Abstract: The National Marrow Donor Program[supreg]/Be The 
Match[supreg] is a HRSA contractor dedicated to helping patients and 
families get the support and information they need to learn about their 
disease and treatment options, prepare for a blood stem cell 
transplant, and thrive after a transplant procedure. The information 
and resources provided help individuals navigate the bone marrow or 
cord blood transplant process. Participant feedback is essential to 
understand the needs for transplant support services and educational 
information across a diverse population. This information is used to 
determine helpfulness of existing services and resources. Feedback is 
also used to identify areas for improvement and develop future 
programs.
    Need and Proposed Use of the Information: Barriers to access to 
bone marrow or cord blood transplant related care and educational 
information are multi-factorial. Feedback from participants is 
essential to better understand the changing needs for services and 
information as well as to demonstrate the effectiveness of existing 
services. The primary use for information gathered through the survey 
is to determine helpfulness of participants' initial contact with Be 
The Match[supreg] Patient Services Coordinators (PSC) and to identify 
areas for improvement in the delivery of services. In addition, 
stakeholders use this evaluation data to make program and resource 
allocation decisions.
    The survey includes items to measure the following: (1) Reason for 
contacting Be The Match[supreg], (2) if the PSC was able to answer 
questions and was easy to understand, (3) if the contact helped the 
participant to feel better prepared to discuss transplants with their 
care team, (4) increase in awareness of available resources, (5) 
timeliness of response, and (6) overall satisfaction.
    The proposed changes to the survey instrument include minor changes 
to both selected survey questions and the instructions. The updated 
survey questions include simplified language and the references to race 
and ethnicity are updated to better match preliminary U.S. Census 
Bureau question format and statements from the U.S. Department of 
Education. The question format changes will better allow individuals to 
self-identify their ethnicity and race and permit individuals to select 
more than one race and/or ethnicity. These changes will not increase 
respondent burden.
    Likely Respondents: Respondents will include all patients, 
caregivers and family members who have contact with Be The Match 
Patient Services Coordinators via phone or email for transplant 
navigation services and support. The decision to survey all 
participants was made based on historic evidence of patients' 
unavailability due to frequent transitions in health status as well as 
between home and the hospital for initial treatment and care for 
complications.
    Burden Statement: Burden in this context means the time expended by 
persons to generate, maintain, retain, disclose or provide the 
information requested. This includes the time needed to review 
instructions; to develop, acquire, install, and utilize technology and 
systems for the purpose of collecting, validating, and verifying 
information, processing and maintaining information, and disclosing and 
providing information; to train personnel and to be able to respond to 
a collection of information; to search data sources; to complete and 
review the collection of information; and to transmit or otherwise 
disclose the information. The total annual burden hours estimated for 
this ICR are summarized in the table below.

                                     Total Estimated Annualized Burden Hours
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                                                                                      Average
                                     Number of       Number of         Total        burden per     Total  burden
            Form name               respondents    responses per     responses     response  (in       hours
                                                    respondent                        hours)
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Be The Match Patient Services                420               1             420            0.25             105
 Survey.........................
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    Total.......................             420  ..............             420  ..............             105
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    HRSA specifically requests comments on (1) the necessity and 
utility of the proposed information collection for the proper 
performance of the agency's functions; (2) the accuracy of the 
estimated burden; (3) ways to enhance

[[Page 37104]]

the quality, utility, and clarity of the information to be collected; 
and (4) the use of automated collection techniques or other forms of 
information technology to minimize the information collection burden.

Amy McNulty,
Acting Director, Division of the Executive Secretariat.
[FR Doc. 2017-16686 Filed 8-7-17; 8:45 am]
 BILLING CODE 4165-15-P