[Federal Register Volume 78, Number 55 (Thursday, March 21, 2013)]
[Notices]
[Pages 17417-17418]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2013-06531]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Agency Information Collection Activities; Submission to OMB for 
Review and Approval; Public Comment Request

ACTION: Notice.

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SUMMARY: In compliance with section 3506(c)(2)(A) of the Paperwork 
Reduction Act of 1995 (44 U.S.C. Chapter 35), the Health Resources and 
Services Administration (HRSA) will submit an Information Collection 
Request (ICR) to the Office of Management and Budget (OMB). Comments 
submitted during the first public review of this ICR will be provided 
to OMB. OMB will accept further comments from the public during the 
review and approval period. To request a copy of the clearance requests 
submitted to OMB for review, email [email protected] or call the HRSA 
Reports Clearance Office at (301) 443-1984.

Information Collection Request Title: Organ and Tissue Donor and 
Recipient Life Stories Form (OMB No. 0915-xxxx)--NEW

    Abstract: HRSA's Division of Transplantation (DoT) is the primary 
entity in the Department of Health and Human Services (HHS) responsible 
for the Organ Transplant Program established under the National Organ 
Transplant Act (Pub. L. 98-507, codified at sections 371-377D of the 
Public Health Service (PHS) Act). Section 377A of the PHS Act 
authorizes the Secretary of HHS to establish a public education program 
to increase awareness about organ donation and the need to provide for 
an adequate rate of such donations. In brief, DoT's responsibilities 
are two-fold: (1) To provide oversight and guidance to the national 
organ transplant system in the U.S. including monitoring the Organ 
Procurement and Transplantation Network and the Scientific Registry of 
Transplant Recipients, and (2) to implement a program of public and 
professional education and outreach aimed at increasing the number of 
organ donors

[[Page 17418]]

in this country. Many preventable deaths occur each year because of a 
staggering imbalance between the supply and demand for donor organs. As 
of March 2013, the national transplant waiting list exceeded 117,000. 
In 2011, the total number of deceased and living organ donors was only 
14,145. These donors enabled 28,538 patients to receive a transplant 
while 6,693 died waiting. Without successful interventions to increase 
donation, the disparity between need and supply is likely to be 
substantially exacerbated, resulting in more unnecessary deaths.
    Organdonor.gov is DoT's primary mechanism for providing the public 
with information about organ donation. Among the most visited pages on 
organdonor.gov are the donor and recipient life stories which in a 
recent evaluation study were shown to raise interest on the topic and, 
more important, persuade people to register as organ donors. To expand 
this component of organdonor.gov, DoT proposes to develop an 
application to give organ recipients, living donors, and donor families 
the opportunity to voluntarily submit their stories to DoT via a 
standardized online form. The online form will be posted on 
organdonor.gov and will collect demographic and contact information, 
the individual's donation/transplant story up to 500 words, a high 
resolution photo, and a signed authorization. The standardized, 
electronic form will increase HRSA staff's ability to process those 
stories more efficiently. In addition to enabling story submission, the 
online application process will make the donor and recipient life 
stories posted on the site searchable by the public to enhance public 
viewing and understanding of the organ donation process. Submission of 
a story and completion of the form is voluntary. Overall, this 
application has the potential to strengthen DoT's outreach efforts and 
increase organ donation registration in the United States.
    Burden Statement: Burden in this context means the time expended by 
persons to generate, maintain, retain, disclose or provide the 
information requested. This includes the time needed to review 
instructions, to develop, acquire, install and utilize technology and 
systems for the purpose of collecting, validating and verifying 
information, processing and maintaining information, and disclosing and 
providing information, to train personnel and to be able to respond to 
a collection of information, to search data sources, to complete and 
review the collection of information, and to transmit or otherwise 
disclose the information. The total annual burden hours estimated for 
this ICR are summarized in the table below.
    The annual estimate of burden is as follows:

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                                     Number of     Responses per       Total         Hours per     Total burden
            Form name               respondents     respondent       responses       response          hours
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Donation/Transplantation Life                100               1             100            0.68              68
 Story Submission Form..........
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    Total.......................             100               1             100            0.68              68
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ADDRESSES: Submit your comments to the desk officer for HRSA, either by 
email to [email protected] or by fax to 202-395-5806. Please 
direct all correspondence to the ``attention of the desk officer for 
HRSA.''
    Deadline: Comments on this ICR should be received within 30 days of 
this notice.

    Dated: March 14, 2013.
Bahar Niakan,
Director, Division of Policy and Information Coordination.
[FR Doc. 2013-06531 Filed 3-20-13; 8:45 am]
BILLING CODE 4165-15-P