[Federal Register Volume 78, Number 10 (Tuesday, January 15, 2013)]
[Notices]
[Pages 3008-3009]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2013-00673]


-----------------------------------------------------------------------

DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Agency Information Collection Activities: Proposed Collection: 
Comment Request

ACTION: Notice.

-----------------------------------------------------------------------

SUMMARY: In compliance with the requirement for opportunity for public 
comment on proposed data collection projects (section 3506(c)(2)(A) of 
Title 44, United States Code, as amended by the Paperwork Reduction Act 
of 1995, Pub. L. 104-13), the Health Resources and Services 
Administration (HRSA) publishes periodic summaries of proposed projects 
being developed for submission to the Office of Management and Budget 
(OMB) under the Paperwork Reduction Act of 1995. To request more 
information on the proposed project or to obtain a copy of the data 
collection plans and draft instruments, email [email protected] or 
call the HRSA Reports Clearance Officer at (301) 443-1984.
    HRSA especially requests comments on: (1) The necessity and utility 
of the proposed information collection for the proper performance of 
the agency's functions, (2) the accuracy of the estimated burden, (3) 
ways to enhance the quality, utility, and clarity of the information to 
be collected, and (4) the use of automated collection techniques or 
other forms of information technology to minimize the information 
collection burden.

Information Collection Request Title: Organ Donation/Transplant Life 
Stories (OMB No. 0915-xxxx)--[New]

Abstract

    HRSA's Division of Transplantation (DoT) is the primary entity in 
the Department of Health and Human Services (HHS) responsible for the 
Organ Transplant Program established under the National Organ 
Transplant Act (Pub. L. 98-507, codified at sections 371-377D of the 
Public Health Service (PHS) Act). Section 377A of the PHS Act 
authorizes the Secretary of HHS to establish a public education program 
to increase awareness about organ donation and the need to provide for 
an adequate rate of such donations. In brief, DoT's responsibilities 
are two-fold: (1) to provide oversight and guidance to the national 
organ transplant system in the U.S. including monitoring the Organ 
Procurement and Transplantation Network and the Scientific Registry of 
Transplant Recipients, and (2) to implement a program of public and 
professional education and outreach aimed at increasing the number of 
organ donors in this country. Many preventable deaths occur each year 
because of a staggering imbalance between the supply and demand for 
donor organs. As of November 2012, the national transplant waiting list 
exceeded 116,000. In 2011, the total number of deceased and living 
organ donors was only 14,145. These donors enabled 28,538 patients to 
receive a transplant while 6,693 died waiting. Without successful 
interventions to increase donation, the disparity between need and 
supply is likely to be substantially exacerbated, resulting in even 
more unnecessary deaths.
    Organdonor.gov is DoT's primary mechanism for providing the public 
with information about organ donation. Among the most visited pages on 
organdonor.gov are the donor and recipient life stories, which in a 
recent evaluation study were shown to raise interest on the topic, and, 
more importantly, persuade people to register as organ donors. To 
expand this component of organdonor.gov, DoT proposes to develop an 
application to give organ recipients and donor families the opportunity 
to voluntarily submit their stories to DoT via a standardized online 
form. The online form will be posted on organdonor.gov and will collect 
demographic and contact information, the individual's donation/
transplant story up to 500 words, a high-resolution photo, and a signed 
authorization. The standardized, electronic form will increase HRSA 
staff's ability to process those stories more efficiently. In addition 
to enabling story submission, the online application process will make 
the donor and recipient life stories posted on the site searchable by 
the public to enhance public viewing and understanding of the organ 
donation process. Submission of a story and completion of the form is 
voluntary. Overall, this application has the potential to strengthen 
DoT's outreach efforts and increase organ donation registration in the 
United States.
    Burden Statement: Burden in this context means the time expended by 
persons to generate, maintain, retain, disclose, or provide the 
information requested. This includes the time needed to review 
instructions, to develop, acquire, install and utilize technology and 
systems for the purpose of collecting, validating and verifying 
information, processing and maintaining information, and disclosing and 
providing information, to train personnel and to be able to respond to 
a collection of information, to search data sources, to complete and 
review the collection of information, and to transmit or otherwise 
disclose the information. The total annual burden hours estimated for 
this Information Collection Request are summarized in the table below.
    The annual estimate of burden is as follows:

----------------------------------------------------------------------------------------------------------------
                                                     Number of                    Average burden
            Form name                Number of     responses per       Total       per response    Total burden
                                    respondents     respondent       responses      (in hours)         hours
----------------------------------------------------------------------------------------------------------------
Donation/Transplantation Life                100               1             100            0.25              25
 Story Submission Form..........
                                 -------------------------------------------------------------------------------
    Total.......................             100               1             100            0.25              25
----------------------------------------------------------------------------------------------------------------


[[Page 3009]]


ADDRESSES: Submit your comments to [email protected] or mail the HRSA 
Reports Clearance Officer, Room 10-29, Parklawn Building, 5600 Fishers 
Lane, Rockville, MD 20857.
    Deadline: Comments on this Information Collection Request must be 
received within 60 days of this notice.

    Dated: January 9, 2013.
Bahar Niakan,
Director, Division of Policy and Information Coordination.
[FR Doc. 2013-00673 Filed 1-14-13; 8:45 am]
BILLING CODE 4165-15-P