[Federal Register Volume 75, Number 149 (Wednesday, August 4, 2010)]
[Notices]
[Pages 46947-46948]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2010-19119]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Secretary's Advisory Committee on Heritable Disorders in Newborns 
and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Public Law 92-463), notice is hereby given of the 
following meeting:

    Name: Secretary's Advisory Committee on Heritable Disorders in 
Newborns and Children.
    Dates and Times: September 16, 2010, 8:30 a.m. to 5 p.m., 
September 17, 2010, 8:30 a.m. to 3:30 p.m.
    Place: Marriott Washington at Metro Center, 775 12th Street, 
NW., Washington, DC 20005.
    Status: The meeting will be open to the public with attendance 
limited to space availability. Participants are asked to register 
for the meeting by going to the registration Web site at http://altarum.cvent.com/event/achdnc2010. The registration deadline is 
Tuesday, September 14, 2010. Individuals who need special 
assistance, such as sign language interpretation or other reasonable 
accommodations should indicate their needs on the registration Web 
site. The deadline for special accommodation requests is Friday, 
September 10, 2010. If there are technical problems gaining access 
to the Web site, please contact Maureen Ball, Meetings Coordinator 
at [email protected].
    Purpose: The Secretary's Advisory Committee on Heritable 
Disorders in Newborns and Children (Advisory Committee) was 
established to advise and guide the Secretary regarding the most 
appropriate application of universal newborn screening tests, 
technologies, policies, guidelines and programs for effectively 
reducing morbidity and mortality in newborns and children having or 
at risk for heritable disorders. The Advisory Committee also 
provides advice and recommendations concerning the grants and 
projects authorized under the Public Health Service Act, 42 U.S.C. 
300b-10, (Heritable Disorders Program) as amended in the Newborn 
Screening Saves Lives Act of 2008.
    Agenda: The meeting will include: (1) A presentation of the 
External Review Workgroup's final report on the nomination of 
Critical Cyanotic Congenital Heart Disease and draft report on the 
nomination of Hyperbilirubinemia to the Advisory Committee's 
recommended uniform screening panel; (2) a discussion of the 
Advisory Committee's final draft of the report on the use and 
storage of newborn screening Residual Blood Spots; (3) an update on 
the report being developed by the Sickle Cell Disease Carrier 
Screening workgroup; and (4) presentations on the continued work and 
reports of the Advisory Committee's subcommittees on laboratory 
standards and procedures, follow-up and treatment, and education and 
training. Proposed Agenda items are subject to change as priorities 
dictate. You can locate the Agenda, Committee Roster and Charter, 
presentations, and meeting materials at the home page of the 
Advisory Committee's Web site at http://www.hrsa.gov/heritabledisorderscommittee/.
    Public Comments: Members of the public can present oral comments 
during the public comment periods of the meeting, which are 
scheduled for both days of the meeting. Those individuals who want 
to make a comment are requested to register online by Tuesday, 
September 14, 2010 at http://altarum.cvent.com/event/achdnc2010. 
Requests will contain the name, address, telephone number, and any 
professional or business affiliation of the person desiring to make 
an oral presentation. Groups having similar interests are requested 
to combine their comments and present them through a single 
representative. The list of public comment participants will be 
posted on the Web site. Written comments should be e-mailed no later 
than Tuesday, September 14, 2010 for consideration. Comments should 
be submitted to Maureen Ball, Meetings

[[Page 46948]]

Coordinator, Conference and Meetings Management, Altarum Institute, 
1200 18th Street, NW., Suite 700, Washington, DC 20036, telephone: 
(202) 828-5100, fax: (202) 785-3083, or e-mail: 
[email protected].
    Contact Person: Anyone interested in obtaining other relevant 
information should contact Alaina M. Harris, Maternal and Child 
Health Bureau, Health Resources and Services Administration, Room 
18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 
20857, telephone (301) 443-0721, [email protected]. More information 
on the Advisory Committee is available at http://mchb.hrsa.gov/heritabledisorderscommittee.

    Dated: July 29, 2010.
Sahira Rafiullah,
Director, Division of Policy and Information Coordination.
[FR Doc. 2010-19119 Filed 8-3-10; 8:45 am]
BILLING CODE 4165-15-P