[Federal Register Volume 75, Number 67 (Thursday, April 8, 2010)]
[Notices]
[Pages 17929-17930]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2010-7929]


-----------------------------------------------------------------------

DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Secretary's Advisory Committee on Heritable Disorders in Newborns 
and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Pub. L. 92-463), notice is hereby given of the following 
meeting:
    Name: Secretary's Advisory Committee on Heritable Disorders in 
Newborns and Children.
    Dates and Times: May 13, 2010, 8:30 a.m. to 5 p.m. May 14, 2010, 
8:30 a.m. to 3:30 p.m.
    Place: Renaissance Washington, DC Dupont Circle Hotel, 1143 New 
Hampshire Avenue, NW., Washington, DC 20037.
    Status: The meeting will be open to the public with attendance 
limited to space availability. Participants are asked to register for 
the meeting by going to the registration Web site at http://events.SignUp4.com/ACHDNC0510. The registration deadline is Tuesday, 
May 11, 2010. Individuals who need special assistance, such as sign 
language interpretation or other reasonable accommodations should 
indicate their needs on the registration Web site. The deadline for 
special accommodation requests is Friday, May 7, 2010. If there are 
technical problems gaining access to the Web site, please contact 
Maureen Ball, Meetings Coordinator, at [email protected].
    Purpose: The Secretary's Advisory Committee on Heritable Disorders 
in Newborns and Children (Advisory Committee) was established to advise

[[Page 17930]]

and guide the Secretary regarding the most appropriate application of 
universal newborn screening tests, technologies, policies, guidelines 
and programs for effectively reducing morbidity and mortality in 
newborns and children having or at risk for heritable disorders. The 
Advisory Committee also provides advice and recommendations concerning 
the grants and projects authorized under the Public Health Service Act, 
42 U.S.C. 300b-10, (Heritable Disorders Program) as amended in the 
Newborn Screening Saves Lives Act of 2008.
    Agenda: The meeting will include: (1) A presentation of the 
External Review Workgroup's final report on the nomination of 
Hemoglobin H disease to the Advisory Committee's recommended uniform 
screening panel; (2) presentations related to the system, information, 
and technology needs of newborn screening programs; (3) an update on 
the report being developed by the Sickle Cell Disease Carrier Screening 
workgroup; and (4) presentations on the continued work and reports of 
the Advisory Committee's subcommittees on laboratory standards and 
procedures, follow-up and treatment, and education and training.
    Proposed Agenda items are subject to change as priorities dictate. 
You can locate the Agenda, Committee Roster and Charter, presentations, 
and meeting materials at the home page of the Advisory Committee's Web 
site at http://www.hrsa.gov/heritabledisorderscommittee/.
    Web cast: The meeting will be Web cast. Information on how to 
access the Web cast will be available one week prior to the meeting, 
May 6, 2010, by clicking on the meeting date link at http://events.SignUp4.com/ACHDNC0510.
    Public Comments: Members of the public can present oral comments 
during the public comment periods of the meeting, which are scheduled 
for both days of the meeting. Those individuals who want to make a 
comment are requested to register online by Tuesday, May 11, 2010, at 
http://events.SignUp4.com/ACHDNC0510. Requests will contain the name, 
address, telephone number, and any professional or business affiliation 
of the person desiring to make an oral presentation. Groups having 
similar interests are requested to combine their comments and present 
them through a single representative. The list of public comment 
participants will be posted on the Web site. Written comments should be 
e-mailed via e-mail no later than Tuesday, May 11, 2010, for 
consideration. Comments should be submitted to Maureen Ball, Meetings 
Coordinator, Conference and Meetings Management, Altarum Institute, 
1200 18th Street, NW., Suite 700, Washington, DC 20036; telephone: 202-
828-5100; fax: 202-785-3083; or e-mail: [email protected].
    Contact Person: Anyone interested in obtaining other relevant 
information should write or contact Alaina M. Harris, Maternal and 
Child Health Bureau, Health Resources and Services Administration, Room 
18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 
20857, Telephone (301) 443-0721, [email protected]. More information on 
the Advisory Committee is available at http://mchb.hrsa.gov/heritabledisorderscommittee.

    Dated: March 31, 2010.
Sahira Rafiullah,
Director, Division of Policy and Information Coordination.
[FR Doc. 2010-7929 Filed 4-7-10; 8:45 am]
BILLING CODE 4165-15-P