[Federal Register Volume 74, Number 221 (Wednesday, November 18, 2009)]
[Notices]
[Page 59564]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: E9-27660]


-----------------------------------------------------------------------

DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders in Newborns and 
Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Pub. L. 92-463), notice is hereby given of the following 
meeting:

    Name: Secretary's Advisory Committee on Heritable Disorders in 
Newborns and Children.
    Dates and Times: January 21, 2010, 8:30 a.m. to 5 p.m.
    January 22, 2010, 8:30 a.m. to 3 p.m.
    Place: Washington Marriott at Metro Center, 775 12th Street, 
NW., Washington, DC 20005.
    Status: The meeting will be open to the public with attendance 
limited to space availability. Participants are asked to register 
for the meeting by going to the registration Web site at http://events.SignUp4.com/ACHDNC0110. The registration deadline is Tuesday, 
January 19, 2010. Individuals who need special assistance, such as 
sign language interpretation or other reasonable accommodations 
should indicate their needs on the registration Web site. The 
deadline for special accommodation requests is Friday, January 15, 
2010. If there are technical problems gaining access to the Web 
site, please contact Feven Habteab, Meetings Coordinator at 
[email protected].
    Purpose: The Secretary's Advisory Committee on Heritable 
Disorders in Newborns and Children (Advisory Committee) was 
established to advise and guide the Secretary regarding the most 
appropriate application of universal newborn screening tests, 
technologies, policies, guidelines and programs for effectively 
reducing morbidity and mortality in newborns and children having or 
at risk for heritable disorders. The Advisory Committee also 
provides advice and recommendations concerning the grants and 
projects authorized under the Public Health Service Act, 42 U.S.C. 
300b-10, (Heritable Disorders Program) as amended in the Newborn 
Screening Saves Lives Act of 2008.
    Agenda: The meeting will include: (1) A presentation of the 
External Review Workgroup's preliminary report on the nomination of 
Alpha-Thalassemia (Hemoglobin H) disease to the Advisory Committee's 
uniform newborn screening panel; (2) a discussion of the Advisory 
Committee's final draft of the report on the use and storage of 
newborn screening Residual Blood Spots; (3) an update on the 
development of the Newborn Screening Information Clearinghouse; and 
(4) presentations on the continued work and reports of the Advisory 
Committee's subcommittees on laboratory standards and procedures, 
follow-up and treatment, and education and training.
    Proposed Agenda items are subject to change as priorities 
dictate. You can locate the Agenda, Committee Roster and Charter, 
presentations, and meeting materials at the home page of the 
Advisory Committee's Web site at http://www.hrsa.gov/heritabledisorderscommittee/.
    Web cast: The meeting will be Web cast. Information on how to 
access the Web cast will be available one week prior to the meeting, 
January 14, 2010, by clicking on the meeting date link at http://events.SignUp4.com/ACHDNC0110.
    Public Comments: Members of the public can present oral comments 
during the public comment periods of the meeting, which are 
scheduled for both days of the meeting. Those individuals who want 
to make a comment are requested to register online by Tuesday, 
January 19, 2010 at http://events.SignUp4.com/ACHDNC0110. Requests 
will contain the name, address, telephone number, and any 
professional or business affiliation of the person desiring to make 
an oral presentation. Groups having similar interests are requested 
to combine their comments and present them through a single 
representative. The list of public comment participants will be 
posted on the Web site. Written comments should be e-mailed via e-
mail no later than Tuesday, January 19, 2010 for consideration. 
Comments should be submitted to Feven Habteab, Meetings Coordinator, 
Conference and Meetings Management, Altarum Institute, 1200 18th 
Street, NW., Suite 700, Washington, DC 20036, telephone: 202 828-
5100; fax: 202 785-3083, or e-mail: [email protected].
    Contact Person: Anyone interested in obtaining other relevant 
information should write or contact Alaina M. Harris, Maternal and 
Child Health Bureau, Health Resources and Services Administration, 
Room 18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, 
Maryland 20857, Telephone (301) 443-0721, [email protected]. More 
information on the Advisory Committee is available at http://mchb.hrsa.gov/heritabledisorderscommittee.

    Dated: November 12, 2009.
Alexandra Huttinger,
Director, Division of Policy Review and Coordination.
[FR Doc. E9-27660 Filed 11-17-09; 8:45 am]
BILLING CODE 4165-15-P