[Federal Register Volume 74, Number 148 (Tuesday, August 4, 2009)]
[Notices]
[Page 38662]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: E9-18526]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders in Newborns and 
Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Public Law 92-463), notice is hereby given of the 
following meeting:

    Name: Secretary's Advisory Committee on Heritable Disorders in 
Newborns and Children (ACHDNC).
    Dates and Times: September 24, 2009, 8:30 a.m. to 5 p.m. 
September 25, 2009, 8:30 a.m. to 3 p.m.
    Place: Bethesda Marriott-Pooks Hill, 5151 Pooks Hill Road, 
Bethesda, MD 20814.
    Status: The meeting will be open to the public with attendance 
limited to space availability. Participants are asked to register 
for the meeting by going to the registration web site at http://events.SignUp4.com/ACHDNC0909. The registration deadline is 
Wednesday, September 23, 2009. Individuals who need special 
assistance, such as sign language interpretation or other reasonable 
accommodations, should indicate their needs on the registration web 
site. The deadline for special accommodation requests is Friday, 
September 18, 2009. If there are technical problems gaining access 
to the web site, please contact Tamar R. Shealy, Meetings Manager, 
Conference and Meetings Management, Altarum Institute, by telephone 
(202) 828-5100 or via e-mail [email protected].
    Purpose: The Secretary's ACHDNC was established to advise and 
guide the Secretary regarding the most appropriate application of 
universal newborn screening tests, technologies, policies, 
guidelines and programs for effectively reducing morbidity and 
mortality in newborns and children having or at risk for heritable 
disorders. The ACHDNC also provides advice and recommendations 
concerning the grants and projects authorized under the Public 
Health Service Act, 42 U.S.C. 300b-10, (Heritable Disorders Program) 
as amended in the Newborn Screening Saves Lives Act of 2008.
    Agenda: The meeting will include presentations and continued 
discussions on the nomination/evaluation process for newborn 
screening candidate conditions. The agenda will include 
presentations on the Newborn Screening Use Case, the National Health 
Information Network, and Newborn Screening Quality Measures, as well 
as presentations on the continued work and reports of the ACHDNC's 
subcommittees on laboratory standards and procedures, follow-up and 
treatment, and education and training.
    Proposed agenda items are subject to change as priorities 
dictate. You can locate the Agenda, Committee Roster and Charter, 
presentations, and meeting materials at the home page of the Web 
site at http://events.SignUp4.com/ACHDNC0909.
    Webcast: The meeting will be Webcast. Information on how to 
access the Webcast will be available on the day of the meeting by 
clicking on the meeting date link at http://events.SignUp4.com/ACHDNC0909.
    Public Comments: Members of the public can present oral comments 
during the public comment periods of the meeting, which are 
scheduled for both days of the meeting. Those individuals who want 
to make a comment are requested to register online by Wednesday, 
September 23, 2009, at http://events.SignUp4.com/ACHDNC0909. 
Requests will contain the name, address, telephone number, and any 
professional or business affiliation of the person desiring to make 
an oral presentation. Groups having similar interests are requested 
to combine their comments and present them through a single 
representative. The list of public comment participants will be 
posted on the web site. Written comments should be emailed no later 
than Wednesday, September 23, 2009, for consideration. Comments 
should be submitted to Tamar R. Shealy, Meetings Manager, Conference 
and Meetings Management, Altarum Institute, 1200 18th Street, NW., 
Suite 700, Washington, DC 20036, telephone: 202 828-5100; fax: 202 
785-3083, or e-mail: [email protected].
    Contact Person: Anyone interested in obtaining other relevant 
information should write or contact Alaina M. Harris, Maternal and 
Child Health Bureau, Health Resources and Services Administration, 
Room 18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, 
Maryland 20857, Telephone (301) 443-0721, [email protected]. More 
information on the Advisory Committee is available at http://mchb.hrsa.gov/heritabledisorderscommittee.

    Dated: July 28, 2009.
Alexandra Huttinger,
Director, Division of Policy Review and Coordination.
[FR Doc. E9-18526 Filed 8-3-09; 8:45 am]
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