[Federal Register Volume 74, Number 67 (Thursday, April 9, 2009)]
[Notices]
[Pages 16218-16219]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: E9-8136]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders in Newborns and 
Children (ACHDNC); Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Pub. L. 92-463), notice is hereby given of the following 
meeting:

    Name: Advisory Committee on Heritable Disorders in Newborns and 
Children.
    Date and Time: May 12, 2009, 1 p.m.-5 p.m. EST.
    Place: Web cast.
    The ACHDNC will meet on Tuesday, May 12, 2009 from 1 p.m. to 5 
p.m. EST. The general public can join the meeting via Webcast by 
logging onto http://altarum.na3.acrobat.com/achdnc/; next select 
``enter as a guest,'' type in your full name, and click ``enter 
room.'' Participants must also dial the toll free phone number for 
audio (listen only). The dial-in number is 1 (877) 551-8166; when 
prompted say the password ``HRSA Genetics''. Participants should 
call no later than 12:50 p.m. EST in order for the logistics to be 
established for participation in the call. If there are technical 
problems gaining access to the call, please contact Alison Gary, Web 
Meetings Coordinator, Altarum Institute, telephone (202) 828-5100, 
or e-mail [email protected].
    Meeting Registration: General public participants are asked to 
register for the conference by going to the meeting Web site at 
http://events.SignUp4.com/achdnc0509. The registration deadline is 
Monday, May 11, 2009.
    Special Accommodations: Attendees requiring special needs such 
as large print materials or additional special needs may make 
comments when registering at the Online Web site. Or you may wish to 
contact Tamar R. Shealy, Senior Meetings Manager, Conference and 
Meetings Management, Conference, Web and Communication Services, 
Altarum Institute; telephone (202) 828-5100, or e-mail Tamar Shealy 
at [email protected].
    Agenda: The meeting will include (1) A presentation of the 
external review

[[Page 16219]]

workgroup's preliminary report on the nomination of Krabbe disease 
to the uniform newborn screening panel, (2) a discussion of the 
Committee's draft issue brief for recommending policies to states 
for the use and storage of newborn screening Residual Blood Spots, 
and (3) a discussion of the impact of the present economy on State 
newborn screening program infrastructures. Agenda items are subject 
to change as priorities dictate. You can also locate the Agenda, 
presentations, and meeting materials at the home page of the meeting 
Web site at http://events.SignUp4.com/achdnc0509.
    Public Comments: Members of the public may present oral comments 
during the public comment session. Individuals must register at the 
meeting Web site at http://events.SignUp4.com/achdnc0509 by Monday, 
May 11, 2009 to receive via e-mail their assigned presentation time. 
Groups having similar interests are requested to combine their 
comments and present them through a single representative. The 
allocation of time may be adjusted to accommodate the level of 
expressed interest. Those presenting oral comments are requested to 
submit their comments in writing for distribution to Committee 
members by Monday, May 11, 2009. Comments should be submitted to 
Tamar R. Shealy, Senior Meetings Manager, Conference and Meetings 
Management, Conference, Web and Communication Services, Altarum 
Institute; telephone (202) 828-5100, fax (202) 785-3083, or e-mail 
Tamar Shealy at [email protected].
    For Further Information Contact: Anyone interested in obtaining 
other relevant information should contact Alaina M. Harris, Maternal 
and Child Health Bureau, Health Resources and Services 
Administration, Room 18A-19, Parklawn Building, 5600 Fishers Lane, 
Rockville, Maryland 20857, Telephone (301) 443-0721, 
[email protected]. More information on the Advisory Committee is 
available at http://www.hrsa.gov/heritabledisorderscommittee/.
    Supplementary Information: The ACHDNC was chartered originally 
under Section 1111 of the Public Health Service (PHS) Act, 42 U.S.C. 
300b-10 in February 2003 to advise the Secretary of the U.S. 
Department of Health and Human Services and as amended in the 
Newborn Screening Saves Lives Act. The Committee is governed by the 
provisions of Public Law 92-463, as amended (5 U.S.C. App. 2), and 
41 CFR part 102-3, which sets forth standards for the formation and 
use of advisory committees. The ACHDNC is directed to review and 
report regularly on newborn and childhood screening practices for 
heritable disorders and to recommend improvements in the national 
newborn and childhood heritable screening programs.

    Dated: April 3, 2009.
Alexandra Huttinger,
Director, Division of Policy Review and Coordination.
[FR Doc. E9-8136 Filed --; 8:45 am]
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