[Federal Register Volume 70, Number 248 (Wednesday, December 28, 2005)]
[Notices]
[Pages 76852-76853]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: E5-7934]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders and Genetic Diseases in 
Newborns and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Pub. L. 92-463), notice is hereby given of the following 
meeting:

    Name: Advisory Committee on Heritable Disorders and Genetic 
Diseases in Newborns and Children (ACHDGDNC).
    Dates and Times: February 13, 2006, 9 a.m. to 5 p.m.; February 
14, 2006, 8:30 a.m. to 3 p.m.
    Place: Ronald Reagan Building and International Trade Center, 
Rotunda Room,

[[Page 76853]]

 1300 Pennsylvania Avenue, NW., Washington, DC 20004.
    Status: The meeting will be open to the public with attendance 
limited to space availability.
    Purpose: The Advisory Committee provides advice and 
recommendations concerning the grants and projects authorized under 
the Heritable Disorders Program and technical information to develop 
policies and priorities for this program. The Heritable Disorders 
Program was established to enhance the ability of State and local 
health agencies to provide for newborn and child screening, 
counseling and health care services for newborns and children having 
or at risk for heritable disorders. The Committee was established 
specifically to advise and guide the Secretary regarding the most 
appropriate application of universal newborn screening tests, 
technologies, policies, guidelines and programs for effectively 
reducing morbidity and mortality in newborns and children having or 
at risk for heritable disorders.
    Agenda: The first day will be devoted to a presentation on the 
National Coordination Center for the Regional Genetics and Newborn 
Screening Collaboratives, presentations on newborn screening 
projects of the Regional Collaboratives, and reports from the 
Committee's subcommittees on laboratory standards and procedures, 
follow-up and treatment and education and training. The second day 
will include discussions on the nomination process for candidate 
conditions on the Newborn Screening Panel and presentations by 
organizations representing policy makers and legislation. Proposed 
agenda items are subject to change.
    Time will be provided each day for public comment. Individuals 
who wish to provide public comment or who plan to attend the meeting 
and need special assistance, such as sign language interpretation or 
other reasonable accommodations, should notify the ACHDGDNC 
Executive Secretary, Michele A. Lloyd-Puryear, M.D., Ph.D. (contact 
information provided below).
    Contact Person: Anyone interested in obtaining a roster of 
members or other relevant information should write or contact 
Michele A. Lloyd-Puryear, M.D., Ph.D., Maternal and Child Health 
Bureau, Health Resources and Services Administration, Room 18A-19, 
Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 20857, 
Telephone (301) 443-1080. Information on the Advisory Committee is 
available at http://mchb.hrsa.gov/programs/genetics/committee.

    Dated: December 20, 2005.
Tina M. Cheatham,
Director, Division of Policy Review and Coordination.
 [FR Doc. E5-7934 Filed 12-27-05; 8:45 am]
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