[Federal Register Volume 70, Number 119 (Wednesday, June 22, 2005)]
[Notices]
[Page 36191]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 05-12233]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders and Genetic Diseases in 
Newborns and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Pub. L. 92-463), notice is hereby given of the following 
meeting:

    Name: Advisory Committee on Heritable Disorders and Genetic 
Diseases in Newborns and Children (ACHDGDNC).
    Dates and Times: July 21, 2005, 9 a.m. to 5 p.m., and July 22, 
2005, 9 a.m. to 3 p.m.
    Place: Ronald Reagan Building and International Trade Center, 
Rotunda Room, 1300 Pennsylvania Avenue, NW., Washington, DC 20004.
    Status: The meeting will be open to the public with attendance 
limited to space availability.
    Purpose: The Advisory Committee provides advice and 
recommendations concerning the grants and projects authorized under 
the Heritable Disorders Program and technical information to develop 
policies and priorities for this program that will enhance the 
ability of the State and local health agencies to provide for 
newborn and child screening, counseling and health care services for 
newborns and children having or at risk for heritable disorders. 
Specifically, the Advisory Committee shall advise and guide the 
Secretary regarding the most appropriate application of universal 
newborn screening tests, technologies, policies, guidelines, and 
programs for effectively reducing morbidity and mortality in 
newborns and children having or at risk for heritable disorders.
    Agenda: Presentations and discussions will include: an update on 
the American College of Medical Genetics report; the role of 
evidence and other factors in decisionmaking; the status of newborn 
screening in States; the newborn screening policy of the American 
College of Obstetrics and Gynecology; and reports from the 
Subcommittees on Education and Training, Treatment and Follow-up, 
and Laboratory Standards and Procedures.
    Proposed agenda items are subject to change as priorities 
indicate.
    Public Comments: Time will be provided each day for public 
comment. Written comments should be submitted no later than July 14, 
2005. Individuals who wish to provide public comment or who plan to 
attend the meeting and need special assistance, such as sign 
language interpretation or other reasonable accommodations, should 
notify the ACHDGDNC Executive Secretary, Michele A. Lloyd-Puryear, 
M.D., Ph.D., Maternal and Child Health Bureau, Health Resources and 
Services Administration, Room 18A-19, Parklawn Building, 5600 
Fishers Lane, Rockville, Maryland 20857, Telephone (301) 443-1080.
    For Further Information Contact: Anyone interested in obtaining 
a roster of members or other relevant information should write or 
contact Jill Shuger, Maternal and Child Health Bureau, Health 
Resources and Services Administration, Room 18A-19, Parklawn 
Building, 5600 Fishers Lane, Rockville, Maryland 20857, Telephone 
(301) 443-1080. Information on the Advisory Committee is available 
at http://mchb.hrsa.gov/programs/genetics/committee.

    Dated: June 16, 2005.
Tina M. Cheatham,
Director, Division of Policy Review and Coordination.
[FR Doc. 05-12233 Filed 6-21-05; 8:45 am]
BILLING CODE 4165-15-P