[Federal Register Volume 70, Number 52 (Friday, March 18, 2005)]
[Notices]
[Pages 13198-13199]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 05-5377]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders and Genetic Diseases in 
Newborns and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Public Law 92-463), notice is hereby given of the 
following meeting:

    Name: Advisory Committee on Heritable Disorders and Genetic 
Diseases in Newborns and Children (ACHDGDNC).
    Dates and Times: April 21, 2005, 9 a.m. to 5 p.m., April 22, 
2005, 9 a.m. to 5 p.m.
    Place: Ronald Reagan Building and International Trade Center, 
1300 Pennsylvania Avenue, NW., Washington, DC 20004.
    Status: The meeting will be open to the public with attendance 
limited to space availability.
    Purpose: The Advisory Committee provides advice and 
recommendations concerning the grants and projects authorized under 
the Heritable Disorders Program and technical information to develop 
policies and priorities for this program that will enhance the 
ability of the State and local health agencies to provide for 
newborn and child screening, counseling and health care services for 
newborns and children having or at risk for heritable disorders. 
Specifically, the Advisory Committee shall advise and guide the 
Secretary regarding the most appropriate application of universal 
newborn screening tests, technologies, policies,

[[Page 13199]]

guidelines and programs for effectively reducing morbidity and 
mortality in newborns and children having or at risk for heritable 
disorders.
    Agenda: Presentations will include a discussion of the report 
from the American College of Medical Genetics; reports from the 
Laboratory Standards and Procedures; Education and Training; and 
Follow-Up Subcommittees; a discussion on the educations process for 
parents and an assessment system and guidelines for state newborn 
screening follow-up.
    Proposed agenda items are subject to change as priorities 
indicate.
    Public Comments: Time will be provided each day for public 
comment. Individuals who wish to provide public comment or who plan 
to attend the meeting and need special assistance, such as sign 
language interpretation or other reasonable accommodations, should 
notify the ACHDGDNC Executive Secretary, Michele A. Lloyd-Puryear, 
M.D., Ph.D. (contact information provided below).
    Contact Person: Anyone interested in obtaining a roster of 
members or other relevant information should write or contact 
Michele A. Lloyd-Puryear, M.D., Ph.D., Maternal and Child Health 
Bureau, Health Resources and Services Administration, Room 18A-19, 
Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 20857, 
Telephone (301) 443-1080. Information on the Advisory Committee is 
available at http://mchb.hrsa.gov/programs/genetics/committee.

    Dated: March 11, 2005.
Tina M. Cheatham,
Director, Division of Policy Review and Coordination.
[FR Doc. 05-5377 Filed 3-17-05; 8:45 am]
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