[Federal Register Volume 69, Number 162 (Monday, August 23, 2004)]
[Notices]
[Pages 51844-51845]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 04-19216]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Centers for Disease Control and Prevention

[60Day-04-04JZ]


Proposed Data Collections Submitted for Public Comment and 
Recommendations

    In compliance with the requirement of Section 3506(c)(2)(A) of the 
Paperwork Reduction Act of 1995 for opportunity for public comment on 
proposed data collection projects, the Centers for Disease Control and 
Prevention (CDC) will publish periodic summaries of proposed projects. 
To request more information on the proposed projects or to obtain a 
copy of the data collection plans and instruments, or to send comments 
contact Seleda Perryman, CDC Assistant Reports Clearance Officer, 1600 
Clifton Road, MS-E11, Atlanta, GA 30333 or send an e-mail to 
[email protected].
    Comments are invited on: (a) Whether the proposed collection of 
information is necessary for the proper performance of the functions of 
the agency, including whether the information shall have practical 
utility; (b) the accuracy of the agency's estimate of the burden of the 
proposed collection of information; (c) ways to enhance the quality, 
utility, and clarity of the information to be collected; and (d) ways 
to minimize the burden of the collection of information on respondents, 
including through the use of automated collection techniques or other 
forms of information technology. Written comments should be received 
within 60 days of this notice.

Proposed Project

    Heart Health Matters for Duchenne Muscular Dystrophy (DMD) Carriers 
Too--New--National Center on Birth Defects and Developmental 
Disabilities (NCBDDD), Centers for Disease Control and Prevention 
(CDC).
    Background and Brief Description: Duchenne Muscular Dystrophy (DMD) 
is the most common form of fatal muscular dystrophy in children. It

[[Page 51845]]

affects about 1 in 3,500 boys. Although almost all cases of DMD are 
diagnosed in young males, the genetic condition that causes DMD is 
carried by females. Today, there are about 40,000 female DMD carriers 
in the United States. Females who carry this genetic condition 
generally do not have symptoms, but some may experience muscle weakness 
and fatigue. Sometimes, they may also develop heart problems that are 
characterized by shortness of breath or an inability to do moderate 
exercise. The chance that a female carrier will develop heart problems 
is unknown, but these heart problems are serious and can be life 
threatening. To learn more about the heart health behaviors of adult 
female DMD carriers, CDC, National Center on Birth Defects and 
Developmental Disabilities proposes to conduct a national survey.
    A large sample of adult female carriers of DMD will be recruited 
for the study from the mailing lists of local, regional, and national 
organizations that work with DMD families. Approximately 1,500 
individuals who agree to participate in the study will complete a 
confidential, one-time, self-administered questionnaire that will be 
mailed to their homes and will take approximately 30 minutes to 
complete. Respondents will also be given the option of responding to an 
electronic version of the survey accessed via the World Wide Web. 
Survey participants will be asked about social and psychological 
aspects of their genetic carrier status, their sources of social 
support, their awareness and knowledge of the link between genetic 
carrier status and heart health, issues about access to specialized 
cardiac health care, and sources of health information that they find 
trustworthy, accessible, and understandable.
    There will be no costs to the respondent. Postage and a return 
envelope will be provided for participants who choose to complete and 
return their survey by mail.

                                             Annualized Burden Table
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                                                                                      Average
                                                     Number of       Number of      burden per     Total  burden
                   Respondents                      respondents    responses per   response  (in       hours
                                                                    respondent         hrs.)
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Complete Questionnaire..........................           1,500               1           30/60             750
                                                 -----------------
    Total.......................................  ..............  ..............  ..............             750
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    Dated: August 12, 2004.
Alvin Hall,
Director, Management Analysis and Services Office, Centers for Disease 
Control and Prevention.
[FR Doc. 04-19216 Filed 8-20-04; 8:45 am]
BILLING CODE 4163-18-P