[Federal Register Volume 69, Number 142 (Monday, July 26, 2004)]
[Notices]
[Page 44539]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 04-16874]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders and Genetic Diseases in 
Newborns and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Public Law 92-463), notice is hereby given of the 
following meeting:

    Name: Advisory Committee on Heritable Disorders and Genetic 
Diseases in Newborns and Children (ACHDGDNC).
    Dates and Times:
September 22, 2004, 9 a.m. to 5 p.m.
September 23, 2004, 9 a.m. to 5 p.m.
    Place: Jurys Washington Hotel, 1500 New Hampshire Avenue, NW., 
Washington, DC 20036. Phone: 202-483-6000. Fax: 202-328-3265. http://www.jurysdoyle.com.
    Status: The meeting will be open to the public with attendance 
limited to space availability.
    Purpose: The Advisory Committee provides advice and 
recommendations concerning the grants and projects authorized under 
the Heritable Disorders Program and technical information to develop 
policies and priorities for this program that will enhance the 
ability of the State and local health agencies to provide for 
newborn and child screening, counseling and health care services for 
newborns and children having or at risk for heritable disorders. 
Specifically, the Committee shall advise and guide the Secretary 
regarding the most appropriate application of universal newborn 
screening tests, technologies, policies, guidelines and programs for 
effectively reducing morbidity and mortality in newborns and 
children having or at risk for heritable disorders.
    Agenda: The first day will be devoted to presentations on the 
following: A report from the American College of Medical Genetics, 
followed by a discussion; new and evolving technologies that State 
newborn screening programs may be using in the near future; and the 
status of tandem mass spectrometry in States and barriers to 
expansion with this technology. The second day will be devoted to 
presentations on analyses of the cost and benefit of newborn 
screening and the financing mechanisms for State newborn screening 
programs.
    Proposed agenda items are subject to change as priorities 
indicate.
    Time will be provided each day for public comment. Individuals 
who wish to provide public comment or who plan to attend the meeting 
and need special assistance, such as sign language interpretation or 
other reasonable accommodations, should notify the ACHDGDNC 
Executive Secretary, Michele A. Lloyd-Puryear, M.D., Ph.D. (contact 
information provided below).
    Contact Person: Anyone interested in obtaining a roster of 
members or other relevant information should write or contact 
Michele A. Lloyd-Puryear, M.D., Ph.D., Maternal and Child Health 
Bureau, Health Resources and Services Administration, Room 18-20, 
Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 20857, 
telephone (301) 443-1080. Information on the Advisory Committee is 
available at http://mchb.hrsa.gov/programs/genetics/committee.

    Dated: July 16, 2004.

Tina M. Cheatham,
Director, Division of Policy Review and Coordination.
[FR Doc. 04-16874 Filed 7-23-04; 8:45 am]
BILLING CODE 4165-15-P