[Federal Register Volume 69, Number 72 (Wednesday, April 14, 2004)]
[Notices]
[Page 19872]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 04-8390]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders and Genetic Diseases in 
Newborns and Children; Notice of Inaugural Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Public Law 92-463), notice is hereby given that the 
following Committee will convene its inaugural meeting.

    Name: Advisory Committee on Heritable Disorders and Genetic 
Diseases in Newborns and Children (ACHDGDNC).
    Dates and Times: June 7, 2004, 9 a.m. to 5 p.m., June 8, 2004, 
8:30 a.m. to 5 p.m.
    Place: Ronald Reagan Building and International Trade Center, 
1300 Pennsylvania Avenue, NW., Washington, DC 20004.
    Status: The meeting will be open to the public with attendance 
limited to space availability.
    Purpose: The Advisory Committee provides advice and 
recommendations concerning the grants and projects authorized under 
the Heritable Disorders Program and technical information to develop 
policies and priorities for this program that will enhance the 
ability of the State and local health agencies to provide for 
newborn and child screening, counseling and health care services for 
newborns and children having or at risk for heritable disorders. 
Specifically, the Committee shall advise and guide the Secretary 
regarding the most appropriate application of universal newborn 
screening tests, technologies, policies, guidelines and programs for 
effectively reducing morbidity and mortality in newborns and 
children having or at risk for heritable disorders.
    Agenda: The first day will be devoted to presentations on and 
discussion of the status and future directions of newborn and child 
screening, counseling and health care services for newborns and 
children having or at risk for heritable disorders and relevant 
surrounding issues. The second day will involve deliberations aimed 
at formulating the ACHDGDNC issues agenda. Time will be provided 
each day for public comment.
    Proposed agenda items are subject to change as priorities 
indicate.
    For Further Information Contact: Individuals who wish to provide 
public comment; plan to attend the meeting and need special 
assistance, such as sign language interpretation or other reasonable 
accommodations; or are interested in obtaining a roster of members 
or other relevant information should write or contact Michele A. 
Lloyd-Puryear, M.D., Ph.D., Maternal and Child Health Bureau, Health 
Resources and Services Administration, Room 18-20, Parklawn 
Building, 5600 Fishers Lane, Rockville, Maryland 20857, Telephone 
(301) 443-1080.

    Dated: April 6, 2004.
Tina M. Cheatham,
Director, Division of Policy Review and Coordination.
[FR Doc. 04-8390 Filed 4-13-04; 8:45 am]
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