[Federal Register Volume 62, Number 86 (Monday, May 5, 1997)]
[Notices]
[Pages 24493-24494]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 97-11647]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

National Institutes of Health


Notice of Meeting

    Pursuant to Section 10(d) of the Federal Advisory Committee Act, as 
amended (5 U.S.C. Appendix 2), notice is hereby given of the meeting of 
the following Special Programs Emphasis Panel of the Office of the 
Director, National Institutes of Health.
    The meeting will be open to the public to provide a forum in which 
individuals from Government, industry, and voluntary health 
organizations work together to prepare a report on steps to coordinate 
rare disease research programs within existing research funds and 
resources. This report will be submitted to the Senate Appropriations 
Committee.
    A portion of the meeting on May 28 will be available for public 
comment. Anyone who would like to provide comments at this meeting 
should contact the Executive Secretary (Contact Person) of the Advisory 
Group on the Coordination of Rare Diseases Research.
    Individuals who plan to attend and need special assistance, such as 
sign language interpretation or other reasonable accommodations, should 
inform the Contact Person listed below in advance of the meeting.

    Name of Panel: Advisory Group on the Coordination of Rare 
Diseases Research
    Dates of Meeting: May 27-28, 1997
    Time of Meeting: May 27--1:00 p.m. May 28--8:30 a.m.
    Place of Meeting: May 27--Wilson Hall, Shannon Building, 
National Institutes of Health, 9000 Rockville Pike, Bethesda, 
Maryland 20892; May 28--Hyatt Regency Hotel, 1 Bethesda Metro 
Center, Bethesda, Maryland 20814.
    Agenda: To identify the following:
     Existing approaches, barriers, and novel methods of 
research planning, coordination, and collaboration of research 
initiatives;
     Strategies that will remove existing barriers to the 
coordination of research;
     Methods that have been particularly effective in 
bridging the gap between basic and applied or clinical research;
     The extent of co-funding or sharing of research 
resources in the public and private sectors (What mechanisms could 
be utilized to foster more co-funded research projects?); and
     Innovative mechanisms to stimulate the coordination of 
research on rare diseases.

[[Page 24494]]

     Contact Person: Dr. Stephen C. Groft (Executive 
Secretary), Director, Office of Rare Disease Research, National 
Institutes of Health, Federal Building, Room 618, 7550 Wisconsin 
Avenue, Bethesda, MD 20892-9120, Telephone: (301) 402-4336, Fax: 
(301) 402-0420.

    Dated: April 28, 1997.
LaVerne Y. Springfield,
Committee Management Officer, NIH.
[FR Doc. 97-11647 Filed 5-2-97; 8:45 am]
BILLING CODE 4140-01-M