[Congressional Record (Bound Edition), Volume 163 (2017), Part 3]
[Extensions of Remarks]
[Page 3199]
[From the U.S. Government Publishing Office, www.gpo.gov]




            INTRODUCTION OF THE RARE DISEASE DAY RESOLUTION

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                           HON. ANDRE CARSON

                               of indiana

                    in the house of representatives

                       Tuesday, February 28, 2017

  Mr. CARSON of Indiana. Mr. Speaker, in the United States, rare 
disorders and diseases are defined as conditions that affect fewer than 
200,000 Americans. These conditions range from neurological diseases to 
devastating disorders that affect development. One thing that all of 
the patients and families affected by these conditions have in common 
is the need for education, research and treatment.
  Though supporting research and development at the National Institutes 
of Health and the Food and Drug Administration, Congress has recognized 
the necessity for investment in lifesaving innovations that have an 
impact on rare diseases. On the last day in February each year, people 
all around the world unite to share their stories and educate 
communities of researchers, health professionals, governments, families 
and friends about how rare diseases affect them. I am introducing this 
resolution to encourage my colleagues in Congress to recognize the 
challenges facing the rare disease patient community and support 
efforts to improve access to treatments and cures.

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