[Congressional Record (Bound Edition), Volume 159 (2013), Part 10]
[House]
[Page 15000]
[From the U.S. Government Publishing Office, www.gpo.gov]




                      MITOCHONDRIAL DISEASE CAUCUS

  (Ms. ROS-LEHTINEN asked and was given permission to address the House 
for 1 minute and to revise and extend her remarks.)
  Ms. ROS-LEHTINEN. Mr. Speaker, I first heard about mitochondrial 
diseases, which are fatal, from my chief of staff, Art Estopinan, who, 
together with his lovely wife Olgita, have been caring for their baby 
after he was diagnosed with TK2 mitochondrial DNA depletion syndrome, 
which has left Arturito, Jr., unable to move his fingers and toes, as 
you see in this poster, putting him in constant need of mechanical 
support to breathe and receive nutrition.
  They were informed that their baby son, Art, Jr., would live only a 
few months, as there were no known medications. But thanks to the 
experimental treatments that Arturito is receiving from Columbia 
University Medical Center, medical care at Johns Hopkins Pediatric 
Hospital, and at the Kennedy Krieger Institute, the doctors have 
established a discharge date for mid-October, an unimaginable 
expectation just a year ago.
  I pray for Arturito, Jr., and babies like him every night. I urge all 
Members to contact our office to make sure that they can learn more 
about these diseases by becoming a part of the Congressional 
Mitochondrial Disease Caucus. Let's look at Arturito, Jr., and let's 
save him and the countless others.

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