[Congressional Record (Bound Edition), Volume 154 (2008), Part 4]
[Senate]
[Page 5817]
[From the U.S. Government Publishing Office, www.gpo.gov]




                         SUBMITTED RESOLUTIONS

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  SENATE RESOLUTION 510--SUPPORTING THE GOALS AND IDEALS OF NATIONAL 
                    CYSTIC FIBROSIS AWARENESS MONTH

  Mrs. MURRAY (for herself and Mr. Inhofe) submitted the following 
resolution; which was referred to the Committee on Health, Education, 
Labor, and Pensions:

                              S. Res. 510

       Whereas cystic fibrosis is one of the most common life-
     threatening genetic diseases in the United States and one for 
     which there is no known cure;
       Whereas the average life expectancy of an individual with 
     cystic fibrosis is 37 years, an improvement from a life 
     expectancy in the 1960s where children did not live long 
     enough to attend elementary school, but still unacceptably 
     short;
       Whereas approximately 30,000 people in the United States 
     have cystic fibrosis, more than half of them children;
       Whereas 1 of every 3,500 babies born in the United States 
     is born with cystic fibrosis;
       Whereas more than 10,000,000 Americans are unknowing, 
     symptom-free carriers of the cystic fibrosis gene;
       Whereas the Centers for Disease Control and Prevention 
     recommend that all States consider newborn screening for 
     cystic fibrosis;
       Whereas the Cystic Fibrosis Foundation urges all States to 
     implement newborn screening for cystic fibrosis to facilitate 
     early diagnosis and treatment which improves health and life 
     expectancy;
       Whereas prompt, aggressive treatment of the symptoms of 
     cystic fibrosis can extend the lives of people who have the 
     disease;
       Whereas recent advances in cystic fibrosis research have 
     produced promising leads in gene, protein, and drug therapies 
     beneficial to people who have the disease;
       Whereas innovative research is progressing faster and is 
     being conducted more aggressively than ever before, due, in 
     part, to the Cystic Fibrosis Foundation's establishment of a 
     model clinical trials network;
       Whereas, although the Cystic Fibrosis Foundation continues 
     to fund a research pipeline for more than 30 potential 
     therapies and funds a nationwide network of care centers that 
     extend the length and quality of life for people with cystic 
     fibrosis, lives continue to be lost to this disease every 
     day;
       Whereas education of the public about cystic fibrosis, 
     including the symptoms of the disease, increases knowledge 
     and understanding of cystic fibrosis and promotes early 
     diagnosis; and
       Whereas the Cystic Fibrosis Foundation will conduct 
     activities to honor National Cystic Fibrosis Awareness Month 
     in May 2008: Now, therefore, be it
       Resolved, That the Senate--
       (1) honors the goals and ideals of National Cystic Fibrosis 
     Awareness Month;
       (2) supports the promotion of further public awareness and 
     understanding of cystic fibrosis;
       (3) encourages early diagnosis and access to quality care 
     for people with cystic fibrosis to improve the quality of 
     their lives; and
       (4) supports research to find a cure for cystic fibrosis by 
     fostering an enhanced research program through a strong 
     Federal commitment and expanded public-private partnerships.

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