[Congressional Record (Bound Edition), Volume 154 (2008), Part 13]
[Extensions of Remarks]
[Pages 17902-17903]
[From the U.S. Government Publishing Office, www.gpo.gov]




               RECOGNIZING THE HOPE AND LIGHT FOUNDATION

                                 ______
                                 

                             HON. TOM PRICE

                               of georgia

                    in the house of representatives

                        Thursday, July 31, 2008

  Mr. PRICE of Georgia. Madam Speaker, I rise today to recognize the 
Hope and Light Foundation for their enduring commitment to the 
elimination of Spinal Muscular Atrophy.
  Founded by Aaron and Stephanie Miller after their first child was 
diagnosed with SMA, this group has tirelessly advocated research and 
education to eliminate this threat. They have armed families with the 
latest data and educated public, business, and community leaders about 
the need for more focus on this genetic disorder.
  Thanks in part to their work, such as co-funding the first FDA 
approved drug trial for SMA Type I and organizing the first 
Southeastern conference dedicated to SMA care and research, the 
families and researchers working to find a cure are closer than ever. 
Out of over 600 neurological disorders analyzed by the National 
Institutes of Health, SMA is considered the closest to realizing 
effective treatment.

[[Page 17903]]

  Madam Speaker, I ask my colleagues to join me and recognize the Hope 
and Light Foundation for their positive efforts for thousands of 
children and families affected by Spinal Muscular Atrophy.

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