[Congressional Record (Bound Edition), Volume 152 (2006), Part 2]
[Senate]
[Page 2053]
[From the U.S. Government Publishing Office, www.gpo.gov]




 SENATE RESOLUTION 378--DESIGNATING FEBRUARY 25, 2006, ``NATIONAL MPS 
                            AWARENESS DAY''

  Mr. GRAHAM (for himself, Mr. Chambliss, Mr. Feingold, Mr. Kohl, Mrs. 
Murray, Ms. Collins, Ms. Snowe, Ms. Murkowski, Mrs. Feinstein, Mr. 
Brownback, Mrs. Dole, Mr. Jeffords, and Mr. Specter) submitted the 
following resolution; which was considered and agreed to:

                              S. Res. 378

       Whereas Mucopolysaccharidosis (referred to in this preamble 
     as ``MPS'') is a genetically determined lysosomal storage 
     disorder that renders the human body incapable of producing 
     certain enzymes needed to breakdown complex carbohydrates;
       Whereas complex carbohydrates are then stored in almost 
     every cell in the body and progressively cause damage to 
     those cells;
       Whereas the cell damage adversely affects the human body by 
     damaging the heart, respiratory system, bones, internal 
     organs, and central nervous system;
       Whereas the cellular damage caused by MPS often results in 
     mental retardation, short stature, corneal damage, joint 
     stiffness, loss of mobility, speech and hearing impairment, 
     heart disease, hyperactivity, chronic respiratory problems, 
     and, most importantly, a drastically shortened life span;
       Whereas the nature of the disorder is usually not apparent 
     at birth;
       Whereas without treatment, the life expectancy of an 
     individual afflicted with MPS begins to decrease at a very 
     early stage in the life of the individual;
       Whereas recent research developments have resulted in the 
     creation of limited treatments for some MPS disorders;
       Whereas promising advancements in the pursuit of treatments 
     for additional MPS disorders are underway;
       Whereas, despite the creation of newly developed remedies, 
     the blood brain barrier continues to be a significant 
     impediment to effectively treating the brain, thereby 
     preventing the treatment of many of the symptoms of MPS;
       Whereas treatments for MPS will be greatly enhanced with 
     continued public funding;
       Whereas the quality of life for individuals afflicted with 
     MPS, and the treatments available to them, will be enhanced 
     through the development of early detection techniques and 
     early intervention;
       Whereas treatments and research advancements for MPS are 
     limited by a lack of awareness about MPS disorders;
       Whereas the lack of awareness about MPS disorders extends 
     to those within the medical community;
       Whereas the damage that is caused by MPS makes it a model 
     for many other degenerative genetic disorders;
       Whereas the development of effective therapies and a 
     potential cure for MPS disorders can be accomplished by 
     increased awareness, research, data collection, and 
     information distribution;
       Whereas the Senate is an institution than can raise public 
     awareness about MPS; and
       Whereas the Senate is also an institution that can assist 
     in encouraging and facilitating increased public and private 
     sector research for early diagnosis and treatments of MPS 
     disorders: Now, therefore, be it
       Resolved, That the Senate--
       (1) designates February 25, 2006, as ``National MPS 
     Awareness Day''; and
       (2) supports the goals and ideals of ``National MPS 
     Awareness Day''.

                          ____________________