[Congressional Record (Bound Edition), Volume 151 (2005), Part 3]
[Extensions of Remarks]
[Page 4400]
[From the U.S. Government Publishing Office, www.gpo.gov]




                            GENETIC RESEARCH

                                 ______
                                 

                           HON. ROBERT W. NEY

                                of ohio

                    in the house of representatives

                        Thursday, March 10, 2005

  Mr. NEY. Mr. Speaker, over the past 15 years this body has provided 
almost $3 billion for genetic research and the sequencing of the human 
genetic code.
  This project, known as the Human Genome Project, has led to more 
information about diseases and a better understanding of our genetic 
makeup.
  Advances in genetics have already led to the discovery of genetic 
markers for heart disease, Alzheimer's, Parkinson's, many cases of 
breast cancer, and a wide variety of other diseases. Along with these 
discoveries, scientists and healthcare professionals are developing new 
diagnostics which allow for early treatment, personalized medicine, new 
cures, and targeted preventative medicine.
  Currently, there are over 15,500 recognized genetic disorders which 
affect 13 million Americans. Just two years after the completion of the 
Human Genome Project, laboratories are offering 1,042 different genetic 
tests, almost 700 of which are used for diagnostic purposes.
  On average, most Americans have six potential harmful genetic 
mutations and the coming years hold tremendous promise as a flood of 
new tests and treatments reach the marketplace. Unfortunately, these 
new abilities to predict and manage disease also provide opportunities 
for the misuse of this information. Should individuals and their 
families run a risk of losing insurance policies and jobs, many may 
choose not to take advantage of these new healthcare technologies.
  Without appropriate protections, this perceived threat could stop 
Americans from learning about their individual healthcare risks and 
taking steps which could prevent life threatening conditions later in 
life.
  For these reasons, I am pleased to support the Genetic Information 
Nondiscrimination Act of 2005 which was introduced today by 
Congresswoman Judy Biggert. This legislation would provide the 
protections needed to insure that the use of genetic information 
continues to advance medical treatments and improve our nation's health 
by prohibiting the improper use of genetic information in employment 
and health insurance. I look forward to working with my Colleagues on 
this important issue.

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