[Congressional Record Volume 171, Number 101 (Thursday, June 12, 2025)]
[House]
[Pages H2659-H2660]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
TIMOTHY O'CLAIR AND MENTAL HEALTH PARITY
(Mr. Tonko of New York was recognized to address the House for 5
minutes.)
Mr. TONKO. Mr. Speaker, I rise today to urge all of us to demand
mental health parity enforcement in honor of a young man that I once
represented, Timothy O'Clair.
I first met Timothy when I served in the State Assembly in New York.
Timothy played Little League and had a smile and spirit that burned
incredibly bright. He played in the chess club and was an avid bowler.
Timothy enjoyed gymnastics, playing the piano, fishing, golfing,
boating, and drawing. He enjoyed the outdoors and was an avid animal
lover. However, Timothy suffered from significant mental health
challenges, and his family struggled along with him, fighting with
insurance companies to get him the care he truly needed.
The insurance companies didn't know the Timothy that I knew. Where we
all saw an extraordinary little guy in a fight for his own life, the
insurance company saw expenses in a ledger book. They put caps on his
care and denied coverage for needed mental health treatment. When
Timothy received the care he needed, he thrived. However, his family
always knew that those caps and denials of coverage were right around
the corner.
Things got worse for Timothy. In order to get him the Medicaid
coverage he needed, Timothy's parents were forced to legally disown
him. Can you imagine being forced to make that decision in your own
family? Unfortunately, for Timothy, even that was not enough.
At 12 years old, Timothy completed suicide.
Timothy's memory will never leave me. His spirit inspired me and a
number of other committed advocates to write and advance Timothy's Law
in New York State, one of the first mental health parity laws in our
country.
Specifically, Timothy's Law required parity in insurance plans
between mental health and general health benefits.
Passing Timothy's Law gave me the drive to improve the way that we
approach mental health care in America nationwide.
To me, that means reducing the stigma for those seeking care,
addressing the growing problem of the youth behavioral health crisis,
and giving our healthcare professionals the resources they truly need
to adequately recognize and address the challenges those who live with
mental illness must grapple with each and every day.
It also means ensuring that parity is fully enforced.
At the Federal level, the Paul Wellstone and Pete Domenici Mental
Health Parity and Addiction Equity Act of 2008 sought to correct the
imbalance between the benefits afforded mental health and substance use
disorders under group health plans and general medical and surgical
benefits typically afforded under such plans.
Mr. Speaker, 15-plus years later, we still are seeing major gaps in
access and affordability between mental health and physical healthcare
and the need for better enforcement of this law.
For example, studies show that insured people are nearly four times
as likely to go out of network and pay higher fees for mental health
care than for physical healthcare. With one in five Americans impacted
by mental health disorders, we must do better.
After many years of engaging on this issue and Congress passing more
laws to strengthen parity, I was excited to see the Biden-Harris
administration push to update the final parity rules which will allow
for greater access to mental health and substance use disorder care.
These regulations implemented an update in the law to close gaps and
improve compliance with parity, which is critical for the 84.5 million
Americans with these conditions.
I had hoped that these rules would finally clarify and strengthen
protections, while reducing barriers to treatment for mental health.
These rules would have required health plans to make changes when they
are providing inadequate access to mental health and substance use
care.
These rules would have made clear that plans cannot use more
restrictive prior authorization, or other medical management
techniques, or narrower networks to make it harder for people to access
mental health and substance use disorder benefits than their medical
benefits.
These rules would also have closed loopholes and required more than
200 additional health plans to comply with the parity law, providing
critical protections to 120,000 consumers.
However, in response to a recent lawsuit, the Trump administration
released an announcement that it no longer plans to enforce the 2024
regulations to protect individuals with mental health conditions and
substance use disorders from discrimination in health insurance.
Together with 17 of my colleagues, I have written to the Trump
administration urging them to reverse course on this senseless
decision. We shared our strong bipartisan sentiment that this decision
``marks a dangerous step in the wrong direction.''
We shared that it is clear that health plans are still consistently
violating the law and systematically limiting access to mental health
and substance use disorder care. Rather than pausing enforcement or
reconsidering the regulations, now is the time to strengthen
enforcement and meaningfully provide and protect our constituents from
discrimination and improve access to care.
There are so many more like Timothy out there right now suffering and
in very real danger of losing access to lifesaving treatment. Instead
of denying them that care, let's support enforcement of our mental
health and addiction parity laws.
For Timothy and his family and friends, the battle continues to
achieve this.
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