[Congressional Record Volume 171, Number 81 (Wednesday, May 14, 2025)]
[Extensions of Remarks]
[Page E426]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




        RECOGNIZING MAY AS HUNTINGTON'S DISEASE AWARENESS MONTH

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                        HON. HILLARY J. SCHOLTEN

                              of michigan

                    in the house of representatives

                        Wednesday, May 14, 2025

  Ms. SCHOLTEN. Mr. Speaker, I rise today to recognize May as 
Huntington's Disease Awareness Month. I want to take a moment to honor 
the courage and strength of families across the Nation who face 
lifelong hardships due to this disease--including one of my own 
constituents, Rachel Reising, and her family. It is so important for 
families like Rachel's for us to encourage dialogue and acknowledgement 
of Huntington's Disease so we can work to improve prevention and care 
of affected folks at the federal level.
  Huntington's disease is a rare genetic disorder that slowly damages 
the brain over time. It leads to a progressive loss of control over 
movements, thoughts, and emotions. There is currently no cure. However, 
there is hope. Because of ongoing advancements in medical research and 
continued investments in biomedical science, we are closer than ever to 
the possibility of breakthrough treatments and perhaps even a cure in 
the decade ahead through gene therapy.
  Rachel, my constituent, recently reached out to me to bravely share 
her story. As she grieves the loss of her father, whom she tragically 
lost to Huntington's, it has become her life's mission to advocate for 
proper care of those with Huntington's and for a cure. I am so moved by 
her strength and resilience.
  In honor of Rachel's family and the tens of thousands of others who 
face Huntington's Disease, I am proud to lend my voice to this cause. 
May this month serve not only as a time of remembrance and education, 
but also a call to action. I ask my colleagues to do everything we can 
to help those living with rare diseases such as Huntington's Disease, 
and to fight for more research, better support, and even greater care.

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