[Congressional Record Volume 171, Number 44 (Monday, March 10, 2025)]
[Extensions of Remarks]
[Page E197]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




    RECOGNIZING ELIZABETH KENNERLEY'S TIRELESS RARE DISEASE ADVOCACY

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                       HON. BRIAN K. FITZPATRICK

                            of pennsylvania

                    in the house of representatives

                         Monday, March 10, 2025

  Mr. FITZPATRICK. Mr. Speaker, I rise today to recognize an 
extraordinary constituent from my district, Elizabeth Kennerley. As a 
rare disease patient, advocate, and unwavering supporter of inclusive 
healthcare, Liz has devoted her life to making a meaningful impact on 
her community and those affected by rare diseases. She continues to 
inspire those around her, with her astounding selflessness and 
resilience.
  Liz's journey is one that few can imagine. As someone who lives with 
the burden of a rare disease, Liz has not only used her personal 
journey to advocate for others but has also dedicated herself to 
advocating on Capitol Hill for those living with rare diseases. She is 
also a dedicated member of the Rare Disease Diversity Coalition (RDDC), 
where she works to ensure that the needs of rare disease patients are 
heard. Liz's work with the RDDC has been instrumental in promoting 
inclusivity in healthcare policy.
  The RDDC proudly awarded Liz this year's RISE Award, as she 
consistently embodies the very essence of what RISE stands for 
Resilience, Inspiration, Strength, and Empowerment.
  As Liz would say, ``being a patient with a rare disease is the 
hardest job in the world,'' a sentiment that highlights the incredible 
challenges and resilience required to live with a rare disease. Through 
her unwavering dedication, Liz ensures that the voices of rare disease 
patients are heard. We thank her for her dedicated service to our 
community.

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