[Congressional Record Volume 170, Number 96 (Wednesday, June 5, 2024)]
[Senate]
[Page S3984]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
RECOGNIZING BREAKTHROUGH T1D
Ms. COLLINS. Madam President, I rise today to commemorate this
special occasion--the renaming of JDRF to Breakthrough T1D--and the
leadership that this organization continues to provide in its advocacy
for children and adults living with type 1 diabetes.
I am proud to have worked with Breakthrough T1D since my very first
year in the Senate in 1997. They are a foundation with a singular
focus: to improve the lives of every person affected by type 1
diabetes--T1D--by supporting research for treatments, cures, and
ultimately a way to prevent the disease. They are the premier global
organization focused on T1D research at every life stage--from stopping
or slowing the progression of T1D in the newly diagnosed, reversing it
in those who have lived with it for years, avoiding or reversing
complications of T1D, and preventing the disease in at risk populations
and in future generations.
Today's rebranding from JDRF--the Juvenile Diabetes Research
Foundation--to Breakthrough T1D represents where we are in the world of
T1D. It never has been just an affliction for the young. Anyone, at any
age, can be diagnosed with T1D. Using the term ``juvenile'' no longer
accurately reflects the organization and its mission. And
``breakthrough'' may speak for itself. The organization is not only at
the forefront of supporting research breakthroughs for T1D, but also is
breaking through the barriers to improve T1D patients' lives. Both
these significant attributes are now rightly reflected in the
organization's name.
Breakthrough T1D will continue to focus on the ultimate goal we all
share: that no one suffers from T1D. And we must not stop until that
goal is reached.
But that goal will only be achieved through more research. That is
why I am proud to continue my work with Senator Shaheen supporting the
reauthorization and funding of the Special Diabetes Program--SDP. The
SDP has funded the creation of unique, innovative, and collaborative
research consortia and clinical trials networks focused on the
prevention, treatment, and cure of T1D for more than 25 years. SDP has
enabled the National Institutes of Health to expand T1D research beyond
what is possible with annual appropriations and to conduct clinical
trials that likely would not be done by the private sector. SDP has
been a key component of many significant breakthroughs in T1D research,
and I want to highlight two.
First, the artificial pancreas. The SDP has supported key research
that helped develop several glucose management technologies, including
the artificial pancreas. The artificial pancreas is a life-changing
advance for many with T1D because it automates insulin delivery in
response to a person's blood glucose level, replacing fingerstick tests
and individual insulin shots. Funding from the SDP over the past decade
has revolutionized the field and increased the number of commercially
available, FDA-approved artificial pancreas devices from zero to seven.
Today, there are even devices available to children as young as 2.
Second, we finally have the first FDA-approved treatment to slow the
progression of T1D. The critical research underpinning this treatment
came from a clinical trial funded by the SDP. This treatment has now
brought forward a new era of T1D clinical management by delaying onset
of the disease by at least 3 years--and potentially more. That is 3
years without having to take insulin, do fingerstick tests, or deal
with potential complications from the disease. While the SDP has led to
countless other breakthroughs in treatment for people living with T1D,
these two examples highlight the importance of the program, the success
of the program, and why it needs to expand and continue until no one
suffers from type 1 diabetes.
As we continue to strive toward a world where no one is afflicted by
T1D, we also need to face today's reality where many Americans who need
lifesaving insulin cannot afford it. The rising cost of insulin
presents a barrier to care for a number of Americans living with T1D.
Out-of-pocket costs increase with list prices, and for people without
insurance, the costs are too often untenable. That is why I am proud to
work with this organization on a bill to limit out-of-pocket costs for
insulin for those with T1D, address structural issues in the insulin
market, and create policies to foster more competition. I will continue
to work with Breakthrough T1D to ensure insulin affordability for all.
Please join me in commemorating today's exciting rebranding from JDRF
to Breakthrough T1D. This organization has been a catalyst in the field
of T1D research and a champion on issues of importance to this
community. I am certain that Breakthrough T1D will continue breaking
through the barriers toward a world where no one is afflicted with type
1 diabetes.
____________________