[Congressional Record Volume 170, Number 22 (Wednesday, February 7, 2024)]
[Senate]
[Pages S444-S445]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




          STATEMENTS ON INTRODUCED BILLS AND JOINT RESOLUTIONS

      By Mr. DURBIN (for himself and Mr. Young):
  S. 3757. A bill to reauthorize the congenital heart disease research, 
surveillance, and awareness program of the Centers for Disease Control 
and Prevention, and for other purposes; to the Committee on Health, 
Education, Labor, and Pensions.
  Mr. DURBIN. Madam President, I ask unanimous consent that the text of 
the bill be printed in the Record.

[[Page S445]]

  There being no objection, the text of the bill was ordered to be 
printed in the Record, as follows:

                                S. 3757

       Be it enacted by the Senate and House of Representatives of 
     the United States of America in Congress assembled,

     SECTION 1. SHORT TITLE.

       This Act may be cited as the ``Congenital Heart Futures 
     Reauthorization Act of 2024''.

     SEC. 2. NATIONAL CONGENITAL HEART DISEASE RESEARCH, 
                   SURVEILLANCE, AND AWARENESS.

       Section 399V-2 of the Public Health Service Act (42 U.S.C. 
     280g-13) is amended--
       (1) by redesignating subsections (f) and (g) as subsections 
     (h) and (i), respectively;
       (2) by inserting after subsection (e) the following:
       ``(f) Stakeholder Workshop.--
       ``(1) In general.--Not later than 1 year after the date of 
     enactment of the Congenital Heart Futures Reauthorization Act 
     of 2024, the Secretary shall convene a workshop composed of 
     subject matter experts, on adult patients living with 
     congenital heart disease, to--
       ``(A) identify research gaps and opportunities related to 
     the lifelong needs of congenital heart disease patients, 
     including long-term health outcomes, quality of life, mental 
     health, and health care utilization;
       ``(B) assess the workforce capacity in the United States of 
     health care providers who treat adult patients living with 
     congenital heart disease, and options to address any such 
     shortages in such workforce, which may include strategies to 
     expand fellowship training programs and support regional care 
     centers; and
       ``(C) foster collaboration and dissemination of information 
     across Federal agencies, health care providers, researchers, 
     and patient organizations.
       ``(2) Composition.--The workshop described in paragraph (1) 
     shall be led by the Secretary, and shall involve participants 
     that include, as appropriate, stakeholders representing 
     patient organizations, health care professionals, research 
     entities, health insurance providers, accrediting 
     organizations, and relevant Federal agencies, including the 
     Centers for Disease Control and Prevention, the National 
     Institutes of Health, and the Health Resources and Services 
     Administration.
       ``(g) Report.--Not later than 3 years after the date of 
     enactment of the Congenital Heart Futures Reauthorization Act 
     of 2024, the Secretary shall issue a report to the Committee 
     on Health, Education, Labor, and Pensions of the Senate and 
     the Committee on Energy and Commerce of the House of 
     Representatives on findings and recommendations of the 
     Secretary with respect to strategies to advance research 
     related to the lifelong needs of congenital heart disease 
     patients and address workforce shortages of providers for 
     adult patients living with congenital heart disease, and, as 
     appropriate, progress made by the Secretary to implement such 
     strategies and a plan for implementing such 
     recommendations.''; and
       (3) in subsection (i), as so redesignated, by striking 
     ``2020 through 2024'' and inserting ``2025 through 2029''.

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