[Congressional Record Volume 169, Number 120 (Thursday, July 13, 2023)]
[Senate]
[Pages S2583-S2584]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
SA 413. Ms. MURKOWSKI (for herself and Ms. Klobuchar) submitted an
amendment intended to be proposed by her to the bill S. 2226, to
authorize appropriations for fiscal year 2024 for military activities
of the Department of Defense, for military construction, and for
defense activities of the Department of Energy, to prescribe military
personnel strengths for such fiscal year, and for other purposes; which
was ordered to lie on the table; as follows:
At the appropriate place in subtitle G of title X, insert
the following:
SEC. __. HHS PROGRAM ON FETAL ALCOHOL SPECTRUM DISORDERS.
(a) In General.--Part O of title III of the Public Health
Service Act (42 U.S.C. 280f et seq.) is amended--
(1) by amending the part heading to read as follows:
``fetal alcohol spectrum disorders prevention and services
program'';
(2) in section 399H (42 U.S.C. 280f)--
(A) in the section heading, by striking ``establishment of
fetal alcohol syndrome prevention'' and inserting ``fetal
alcohol spectrum disorders prevention, intervention,'';
(B) by striking ``Fetal Alcohol Syndrome and Fetal Alcohol
Effect'' each place it appears and inserting ``FASD'';
(C) in subsection (a)--
(i) by amending the heading to read as follows: ``In
General'';
(ii) in the matter preceding paragraph (1)--
(I) by inserting ``or continue activities to support''
after ``shall establish'';
(II) by striking ``FASD'' (as amended by subparagraph (B))
and inserting ``fetal alcohol spectrum disorders (referred to
in this section as `FASD')'';
(III) by striking ``prevention, intervention'' and
inserting ``awareness, prevention, identification,
intervention,''; and
(IV) by striking ``that shall'' and inserting ``, which
may'';
(iii) in paragraph (1)--
(I) in subparagraph (A)--
(aa) by striking ``medical schools'' and inserting ``health
professions schools''; and
(bb) by inserting ``infants,'' after ``provision of
services for''; and
(II) in subparagraph (D), by striking ``medical and
mental'' and inserting ``agencies providing'';
(iv) in paragraph (2)--
(I) in the matter preceding subparagraph (A), by striking
``a prevention and diagnosis program to support clinical
studies, demonstrations and other research as appropriate''
and inserting ``supporting and conducting research on FASD,
as appropriate, including'';
(II) in subparagraph (B)--
(aa) by striking ``prevention services and interventions
for pregnant, alcohol-dependent women'' and inserting
``culturally and linguistically informed evidence-based or
practice-based interventions and appropriate societal
supports for preventing prenatal alcohol exposure, which may
co-occur with exposure to other substances''; and
(bb) by striking ``; and'' and inserting a semicolon;
(v) by striking paragraph (3) and inserting the following:
[[Page S2584]]
``(3) integrating into surveillance practice an evidence-
based standard case definition for fetal alcohol syndrome
and, in collaboration with other Federal and outside
partners, support organizations of appropriate medical and
mental health professionals in their development and
refinement of evidence-based clinical diagnostic guidelines
and criteria for all fetal alcohol spectrum disorders; and
``(4) building State and Tribal capacity for the
identification, treatment, and support of individuals with
FASD and their families, which may include--
``(A) utilizing and adapting existing Federal, State, or
Tribal programs to include FASD identification and FASD-
informed support;
``(B) developing and expanding screening and diagnostic
capacity for FASD;
``(C) developing, implementing, and evaluating targeted
FASD-informed intervention programs for FASD;
``(D) increasing awareness of FASD;
``(E) providing training with respect to FASD for
professionals across relevant sectors; and
``(F) disseminating information about FASD and support
services to affected individuals and their families.'';
(D) in subsection (b)--
(i) by striking ``described in section 399I'';
(ii) by striking ``The Secretary'' and inserting the
following:
``(1) In general.--The Secretary''; and
(iii) by adding at the end the following:
``(2) Eligible entities.--To be eligible to receive a
grant, or enter into a cooperative agreement or contract,
under this section, an entity shall--
``(A) be a State, Indian Tribe or Tribal organization,
local government, scientific or academic institution, or
nonprofit organization; and
``(B) prepare and submit to the Secretary an application at
such time, in such manner, and containing such information as
the Secretary may require, including a description of the
activities that the entity intends to carry out using amounts
received under this section.
``(3) Additional application contents.--The Secretary may
require that an entity using amounts from a grant,
cooperative agreement, or contract under this section for an
activity under subsection (a)(4) include in the application
for such amounts submitted under paragraph (2)(B)--
``(A) a designation of an individual to serve as a FASD
State or Tribal coordinator of such activity; and
``(B) a description of an advisory committee the entity
will establish to provide guidance for the entity on
developing and implementing a statewide or Tribal strategic
plan to prevent FASD and provide for the identification,
treatment, and support of individuals with FASD and their
families.''; and
(E) by striking subsections (c) and (d); and
(F) by adding at the end the following:
``(c) Definition of FASD-informed.--For purposes of this
section, the term `FASD-informed', with respect to support or
an intervention program, means that such support or
intervention program uses culturally and linguistically
informed evidence-based or practice-based interventions and
appropriate societal supports to support an improved quality
of life for an individual with FASD and the family of such
individual.''; and
(3) by striking sections 399I, 399J, and 399K (42 U.S.C.
280f-1, 280f-2, 280f-3) and inserting the following:
``SEC. 399I. FETAL ALCOHOL SPECTRUM DISORDERS CENTERS FOR
EXCELLENCE.
``(a) In General.--The Secretary shall, as appropriate,
award grants, cooperative agreements, or contracts to public
or nonprofit entities with demonstrated expertise in the
prevention of, identification of, and intervention services
with respect to, fetal alcohol spectrum disorders (referred
to in this section as `FASD') and other related adverse
conditions. Such awards shall be for the purposes of
establishing Fetal Alcohol Spectrum Disorders Centers for
Excellence to build local, Tribal, State, and national
capacities to prevent the occurrence of FASD and other
related adverse conditions, and to respond to the needs of
individuals with FASD and their families by carrying out the
programs described in subsection (b).
``(b) Programs.--An entity receiving an award under
subsection (a) may use such award for the following purposes:
``(1) Initiating or expanding diagnostic capacity for FASD
by increasing screening, assessment, identification, and
diagnosis.
``(2) Developing and supporting public awareness and
outreach activities, including the use of a range of media
and public outreach, to raise public awareness of the risks
associated with alcohol consumption during pregnancy, with
the goals of reducing the prevalence of FASD and improving
the developmental, health (including mental health), and
educational outcomes of individuals with FASD and supporting
families caring for individuals with FASD.
``(3) Acting as a clearinghouse for evidence-based
resources on FASD prevention, identification, and culturally
and linguistically informed best practices, including the
maintenance of a national data-based directory on FASD-
specific services in States, Indian Tribes, and local
communities, and disseminating ongoing research and
developing resources on FASD to help inform systems of care
for individuals with FASD across their lifespan.
``(4) Increasing awareness and understanding of
efficacious, evidence-based FASD screening tools and
culturally- and linguistically-appropriate evidence-based
intervention services and best practices, which may include
by conducting national, regional, State, Tribal, or peer
cross-State webinars, workshops, or conferences for training
community leaders, medical and mental health and substance
use disorder professionals, education and disability
professionals, families, law enforcement personnel, judges,
individuals working in financial assistance programs, social
service personnel, child welfare professionals, and other
service providers.
``(5) Improving capacity for State, Tribal, and local
affiliates dedicated to FASD awareness, prevention, and
identification and family and individual support programs and
services.
``(6) Providing technical assistance to recipients of
grants, cooperative agreements, or contracts under section
399H, as appropriate.
``(7) Carrying out other functions, as appropriate.
``(c) Application.--To be eligible for a grant, contract,
or cooperative agreement under this section, an entity shall
submit to the Secretary an application at such time, in such
manner, and containing such information as the Secretary may
require.
``(d) Subcontracting.--A public or private nonprofit entity
may carry out the following activities required under this
section through contracts or cooperative agreements with
other public and private nonprofit entities with demonstrated
expertise in FASD:
``(1) Prevention activities.
``(2) Screening and identification.
``(3) Resource development and dissemination, training and
technical assistance, administration, and support of FASD
partner networks.
``(4) Intervention services.
``SEC. 399J. AUTHORIZATION OF APPROPRIATIONS.
``There are authorized to be appropriated to carry out this
part such sums as may be necessary for each of fiscal years
2024 through 2028.''.
(b) Report.--Not later than 4 years after the date of
enactment of this Act, the Secretary of Health and Human
Services shall submit to the Committee on Health, Education,
Labor, and Pensions of the Senate and the Committee on Energy
and Commerce of the House of Representatives a report on the
efforts of the Department of Health and Human Services to
advance public awareness on, and facilitate the
identification of best practices related to, fetal alcohol
spectrum disorders identification, prevention, treatment, and
support.
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