[Congressional Record Volume 168, Number 127 (Friday, July 29, 2022)]
[Extensions of Remarks]
[Page E805]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




                        RARE KIDNEY DISEASE WEEK

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                        HON. THEODORE E. DEUTCH

                               of florida

                    in the house of representatives

                         Friday, July 29, 2022

  Mr. DEUTCH. Madam Speaker, I rise today to recognize the designation 
of July 18 to July 22, 2022, as Rare Kidney Disease Week.
  Too often, rare kidney diseases are life-threatening, lack effective 
treatments, are difficult to diagnose. Many individuals who are 
diagnosed with a rare kidney disease--particularly communities of 
color, which are disproportionately burdened by disease--rapidly 
progress to end-stage kidney disease, kidney failure, and the need for 
a kidney transplant. Meanwhile, there has been little to no innovation 
in treatment for kidney disease patients since the 1960s--a time when 
the use of dialysis and immunosuppressants became commonplace.
  This lack of innovation makes Rare Kidney Disease Week especially 
crucial for spreading awareness. Increased awareness of rare kidney 
diseases will encourage accurate and early diagnosis, help prevent the 
need for dialysis and kidney transplant, and support both public and 
private efforts to develop effective diagnostics and cures.
  It is with high expectations that Rare Kidney Disease Week is 
observed nationally for years to come, providing hope for and shedding 
light upon the rare kidney disease community.
  Once again, I am pleased to recognize July 18 through July 22, 2022, 
as Rare Kidney Disease Week.

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