[Congressional Record Volume 168, Number 107 (Thursday, June 23, 2022)]
[House]
[Page H5831]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
MY BODY, MY DATA ACT
The SPEAKER pro tempore. The Chair recognizes the gentlewoman from
California (Ms. Jacobs) for 5 minutes.
Ms. JACOBS of California. Mr. Speaker, right now, as we meet in this
Chamber, the Supreme Court is releasing a new slate of opinions. And
like millions of people across the country, I have been waiting with
dread for what is coming. As we wait, we are texting, messaging our
friends and loved ones, providing support, looking for more
information, and it is all taking place on our devices. That is how we
live in 2022.
I am determined to make sure that as we continue to fight for our
rights, we do so with policies that reflect today's world. That is why
I am proud to have introduced the My Body, My Data Act, new legislation
to protect our personal reproductive health data. I am proud that
Senator Hirono and Senator Wyden have introduced a companion bill in
the Senate and that we have 43 cosponsors from across the ideological
spectrum here in the House.
When the Supreme Court's draft decision on Dobbs v. Jackson Women's
Health Organization leaked, the decision that would undo decades of
precedent and overturn the landmark opinion of Roe v. Wade, I
immediately started hearing from friends and constituents, panicked
that their reproductive health data could fall into the wrong hands,
panicked that the personal information on their phones, on their
computers could be used against them in a post-Roe world where abortion
is criminalized and where laws, like the Texas bounty hunter law, give
extremists a financial incentive to target vulnerable people.
Shortly after, experts started sounding the alarm that our personal
reproductive health data--from search engines to menstruation and
pregnancy-tracking apps--would be used to target people if abortion is
criminalized. Right now, there are no protections from that happening.
Mr. Speaker, as a young woman, reproductive healthcare is my
healthcare. And like tens of millions of Americans, I have used apps to
track my period. When the draft decision leaked, I knew we couldn't
wait for the final opinion. We couldn't just wait for Roe to be
overturned so I got to work, because it is unconscionable that our
personal reproductive information could be sold to the highest bidder
and weaponized against us--and especially against low-income people and
people of color, who would be the most impacted if Roe is overturned.
To protect access, Congress must codify the right to an abortion, and
I am proud to be an original cosponsor of the Women's Health Protection
Act. Alongside strong protections for abortion access, we need strong
privacy protections. That is why I introduced the My Body, My Data Act.
Our personal reproductive and sexual health information is our most
sensitive and personal data, and it deserves the highest level of
privacy protection that the government can provide.
I am proud to say that is what the My Body, My Data Act accomplishes.
It is endorsed by Planned Parenthood, NARAL, the Electronic Frontier
Foundation, and many others. This bill restricts businesses and
nongovernmental organizations from collecting, using, retaining, or
disclosing reproductive health information beyond what is strictly
necessary to provide a product or service.
The bill provides everyday people with the right to access or delete
their personal reproductive health information, if they choose to, and
it requires organizations to publish their privacy policies.
Importantly, the My Body, My Data Act includes strong enforcement
mechanisms, including a private right of action that allows individuals
to bring a lawsuit if their privacy is violated.
With 26 States likely or certain to ban abortion if Roe is
overturned, this legislation is more urgent than ever. I am proud to
lead this legislation, and I urge my colleagues to support it.
____________________