[Congressional Record Volume 168, Number 70 (Thursday, April 28, 2022)]
[Senate]
[Page S2221]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
By Mr. REED (for himself, Mrs. Capito, Mr. Van Hollen, and Ms.
Murkowski):
S. 4120. A bill to maximize discovery, and accelerate development and
availability, of promising childhood cancer treatments, and for other
purposes; to the Committee on Health, Education, Labor, and Pensions.
Mr. REED. Mr. President, I am pleased to be joined by Senators
Capito, Van Hollen, and Murkowski in introducing the Childhood Cancer
Survivorship, Treatment, Access, and Research, STAR, Reauthorization
Act of 2022. This legislation is an extension of ongoing bipartisan
efforts in the Senate over the past decade to get us closer to the goal
of hopefully one day curing cancers in children, adolescents, and young
adults. Representatives McCaul, Speier, Butterfield, and Kelly are
introducing companion legislation in the House of Representatives.
I first started working on this issue after meeting the Haight family
from Warwick, RI, in June of 2004. Nancy and Vincent lost their son,
Ben, when he was just 9 years old to neuroblastoma, a very aggressive
tumor in the brain. The heart-wrenching story of Ben Haight highlights
the importance of this legislation. It is my hope that one day Ben's
story, and thousands of other children like him, will be one of
survival. With the strong support of families like the Haights, I
introduced bipartisan legislation that eventually was signed into law
in 2008 as the Caroline Pryce Walker Conquer Childhood Cancer Act--the
first effort to provide increased research and improved treatment
options for childhood cancers.
Over the last several years, I have also had the pleasure of getting
to know Grace Carey and her parents, Rebekah Ham and Russell Carey, of
Providence, RI. Grace was diagnosed with brain cancer at 5 years old
and stands as a proud survivor of childhood cancer. Grace and her
family are powerful advocates in the fight against childhood cancer,
having worked with the St. Baldrick's Foundation to support the
original Childhood Cancer STAR Act, which I introduced in 2015 with
Senator Capito and was signed into law in 2018.
The STAR Act took the next needed steps to advance pediatric cancer
research and child-focused cancer treatments, while also improving
childhood cancer surveillance and providing resources for survivors and
those impacted by childhood cancer.
If a treatment is working, doctors elsewhere should know immediately.
The same should happen if a treatment isn't working or if other major
medical events occur during the course of a particular treatment. It is
critical that doctors, nurses, and other providers are able to
effectively communicate information about the disease, the treatment
process, and what other health and development impacts children can
expect to experience. As such, the STAR Act helped build a
comprehensive children's cancer biorepository for researchers and
improved surveillance of childhood cancer cases. Our reauthorization
will build on these efforts and aims to make the biorepository easier
for researchers to use, improving access to biospecimens.
In addition, we must do more to ensure that children survive cancer
and any late effects so they can live a long, healthy, and productive
life. The STAR Act enhanced research on the late effects of childhood
cancers, improved collaboration among providers so that doctors are
better able to care for this population as they age, and began to
explore improved models of care for childhood cancer survivors. Since
implementation of the STAR Act, the National Cancer Institute has
awarded over $16 million in new survivorship grants. It is critical
that we reauthorize the STAR Act to continue funding these vital
projects.
I look forward to working with Senators Capito, Van Hollen,
Murkowski, as well as Representatives McCaul, Speier, Butterfield, and
Kelly, along with advocates like the St. Baldrick's Foundation, to
build support for the Childhood Cancer STAR Reauthorization Act.
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