[Congressional Record Volume 167, Number 105 (Wednesday, June 16, 2021)]
[Extensions of Remarks]
[Page E657]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




            ARTHROGRYPOSIS MULTIPLEX CONGENITA AWARENESS DAY

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                        HON. NICOLE MALLIOTAKIS

                              of new york

                    in the house of representatives

                        Wednesday, June 16, 2021

  Ms. MALLIOTAKIS. Madam Speaker, I rise today to recognize the 
National Day of Arthrogryposis Multiplex Congenita (AMC) on Wednesday, 
June 30, 2021. This condition is present in 1 in 3,000 babies a year, 
which causes many joints of the body to be stiff and crooked at birth. 
There are over 400 different types of AMC, which is an umbrella 
diagnosis that derives from many syndromes. This condition is not 
curable, but it is treatable. A newborn with AMC lacks the range of 
motion in one of more joints, but with early intervention, therapies 
can help children achieve their cognitive, social, emotional, and 
physical development goals. New York State has one of the most active 
AMC awareness organizations with grassroots efforts located in my 
district, the borough of Staten Island, NY. My constituent, Valerie 
Pepe, was born with AMC on June 11, 1967. Valerie now hosts the AMC 
Music Festival which helps raise money and awareness for those affected 
by AMC. Thank you for allowing me to recognize her efforts and to bring 
awareness to the families affected by AMC. As a member of the Rare 
Disease Caucus, it is my hope that Congress will continue to encourage 
research and medical innovation to treat AMC.

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