[Congressional Record Volume 167, Number 22 (Friday, February 5, 2021)]
[Extensions of Remarks]
[Pages E114-E115]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




                 CONGENITAL HEART DEFECT AWARENESS WEEK

                                 ______
                                 

                           HON. JOHN W. ROSE

                              of tennessee

                    in the house of representatives

                        Friday, February 5, 2021

  Mr. ROSE. Madam Speaker, I rise today in support of February 7-14th 
being recognized as Congenital Heart Disease Awareness Week. Each year 
in the United States, more than 40,000 babies are born with a 
congenital heart defect. The medical community has identified 
congenital heart defects as the leading cause of birth defect-related 
deaths. Currently, there is no cure for congenital heart defects, and 
it is a lifelong disease requiring ongoing specialized care.

[[Page E115]]

  Chance Bond, a ten-year-old boy that resides in the Sixth District of 
Tennessee, was born with hypoplastic left heart syndrome, or HLHS. He 
had received three open heart surgeries by the age of two. He is now 
ten years old and his mother, Amanda Bond, says that he is still living 
his life to the fullest. I was blessed to meet Chance last year when he 
visited Washington, D.C. His courage and bravery at such a young age is 
truly an inspiration.
  Fewer than 10 percent of adults with congenital heart disease are 
receiving the recommended care they need. Congenital Heart Defect 
Awareness Week provides the opportunity for patients and families 
affected by this condition to share their experiences and knowledge, so 
that the general public may be made aware of how this defect affects 
their lives. I urge all of my colleagues to support the recognition of 
February 7-14th as Congenital Heart Disease Awareness Week.

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