[Congressional Record Volume 164, Number 125 (Wednesday, July 25, 2018)]
[Senate]
[Pages S5385-S5386]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
SA 3583. Mrs. SHAHEEN (for herself, Ms. Collins, Mr. Murphy, Mr.
Blumenthal, Mrs. Gillibrand, Mr. Menendez, Mr. Merkley, Mr. Booker, Ms.
Hassan, and Mr. King) submitted an amendment intended to be proposed by
her to the bill H.R. 6147, making appropriations for the Department of
the Interior, environment, and related agencies for the fiscal year
ending September 30, 2019, and for other purposes; which was ordered to
lie on the table; as follows:
At the appropriate place in Division A, insert the
following:
[[Page S5386]]
SEC. __. ADDRESSING PEDIATRIC CANCER RATES IN THE UNITED
STATES.
(a) Report Identifying Geographic Variation of Types of
Pediatric Cancer.--Not later than 180 days after the date of
enactment of this Act, the Secretary of Health and Human
Services shall submit to the Committee on Health, Education,
Labor, and Pensions of the Senate and the Committee on
Appropriations of the Senate, the Committee on Energy and
Commerce of the House of Representatives and the Committee on
Appropriations of the House of Representatives, a report that
provides details on the geographic variation in pediatric
cancer incidence in the United States, including--
(1) the types of pediatric cancer within each of the 10
States with the highest age-adjusted incidence rate of cancer
among persons aged 20 years or younger; and
(2) geographic concentrations of types and prevalence of
pediatric cancers within each such State, in accordance with
Centers for Disease Control and Prevention guidelines.
(b) Support for States With High Incidence of Pediatric
Cancer.--Funds made available under the heading ``Toxic
Substances and Environmental Public Health'' for the Agency
for Toxic Substances and Disease Registry may be expended for
public outreach and events to--
(1) inform residents and State and local health agencies in
the 10 States with the highest age-adjusted incidence rate of
cancer among persons aged 20 years or younger of possible
contributing factors to pediatric cancer, including
environmental exposures; and
(2) guide investigations relating to causes of variation in
pediatric cancer incidence.
(c) Study of Pediatric Cancer Factors.--
(1) In general.--Not later than 5 years after the date of
enactment of this Act, the Secretary of Health and Human
Services shall submit to the Committee on Health, Education,
Labor and Pensions of the Senate and the Committee on
Appropriations of the Senate, the Committee on Energy and
Commerce of the House of Representatives and the Committee on
Appropriations of the House of Representatives, and the State
health agencies of the States described in this paragraph, a
report containing the results of a study conducted by the
Secretary of the 10 States with the highest age-adjusted
incidence rate of cancer among persons aged 20 years or
younger to identify underlying contributing factors for
pediatric cancer that are unique to each of such States.
(2) Public engagement.--Upon submission of the report under
paragraph (1), the Secretary of Health and Human Services
shall conduct public education and outreach activities to
provide information to residents of the States included in
the study under such subsection concerning the findings
identified in such study and actions taken to identify and
address contributing factors to pediatric cancer.
(3) Funding.--The Secretary may request such funds as may
be necessary to carry out this subsection.
(d) Privacy.--The Secretary of Health and Human Services
shall ensure that all information with respect to patients
that is contained in the reports under this section is de-
identified in a manner that protects the privacy of such
patients.
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