[Congressional Record Volume 161, Number 102 (Wednesday, June 24, 2015)]
[Senate]
[Page S4594]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
ALZHEIMER'S & BRAIN AWARENESS MONTH
Mr. KAINE. Mr. President. I wish to commemorate Alzheimer's & Brain
Awareness month. The impact of Alzheimer's is felt in families and
communities across Virginia and the Nation, and this month provides an
opportunity to stand with those suffering from Alzheimer's and other
brain diseases to raise awareness. I am also proud to cosponsor S. 857,
the Health Outcomes, Planning, and Education, HOPE, for Alzheimer's Act
today.
The challenges Alzheimer's poses for families are real. Financially
and emotionally, Alzheimer's disease has a devastating impact as
patients need to navigate medical information, access community
services and prepare for living with this disease. In Virginia there
are over 130,000 people living with Alzheimer's and that number is
expected to grow to as many as 190,000 by 2025. Alzheimer's does not
only impact the individual patient, but also changes the lives of
family caregivers. In 2014, an estimated 452,000 family caregivers
provided 514 million hours of care for individuals with Alzheimer's
disease and dementia in Virginia.
The cost is also significant for the Federal Government. Nearly one
in every five Medicare dollars is spent on someone with Alzheimer's or
dementia, and by 2050, it will be nearly $1 of every $3. In the years
between 2015 and 2050, caring for people with Alzheimer's will cost our
country $20.8 trillion. Research funding is critical, and action is
needed to provide to support for newly diagnosed patients and families.
The HOPE for Alzheimer's Act would ensure patients and their families
have access to a care planning session with their doctor to help them
understand the diagnosis, treatment options, and what medical and
community services are available. Studies have shown that providing
patients and families with a full range of information and support
results in better outcomes for those living with Alzheimer's, including
higher quality of care, increased use of needed community services,
reduced patient behavioral and psychiatric symptoms, and reduced
caregiver stress and depression. According to the Alzheimer's
Association, only 45 percent of people with Alzheimer's disease or
their caregivers report being told of their diagnosis.
This legislation provides for Medicare coverage for comprehensive
Alzheimer's disease care planning services. While Medicare covers
Alzheimer's disease diagnostic services, it currently does not provide
coverage for comprehensive care planning following a diagnosis. These
critical services will allow patients and families to understand the
diagnosis, receive information about medical and non-medical options
for ongoing treatment, services and supports and how to access care.
As a member of the Committee on Aging, I am committed to working with
my colleagues to raise awareness about this devastating disease, and
thank the Alzheimer's Association and other advocates for their strong
voices during June and throughout the year.
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