[Congressional Record Volume 161, Number 79 (Thursday, May 21, 2015)]
[Extensions of Remarks]
[Page E781]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




          HONORING PENNSYLVANIA CYSTIC FIBROSIS, INC. (PACFI)

                                 ______
                                 

                            HON. TOM MARINO

                            of pennsylvania

                    in the house of representatives

                         Thursday, May 21, 2015

  Mr. MARINO. Mr. Speaker, I rise today in order to congratulate 
Pennsylvania Cystic Fibrosis, Inc. (PACFI) for 30 years of work in 
raising Cystic Fibrosis awareness and funding Cystic Fibrosis research 
efforts. PACFI is an independent, non-profit, all volunteer 
organization that provides crucial services and much needed support for 
Pennsylvania families affected by Cystic Fibrosis.
   PACFI was founded on October 2, 1985. The PACFI organization is 
unique in that they do not have a paid staff and operate solely with 
volunteers. This allows PACFI to use 100% of donations they receive to 
provide benefits for Pennsylvania families such as paying for emergency 
and other medical expenses.
   PACFI also works to fund Cystic Fibrosis research around the 
country. To date, they have raised more than $565,000 for institutions 
and universities that are on the leading edge of Cystic Fibrosis 
research. These donations are helping to discover better treatment 
options and will hopefully lead to a cure.
   PACFI is doing excellent work in Pennsylvania on one of the most 
common and fatal genetic diseases. Cystic Fibrosis affects 
approximately 1 in 2000 people and their life expectancy is only 35 
years. I commend PACFI for doing great work in the field of Cystic 
Fibrosis research and supporting families that need assistance with the 
costs of Cystic Fibrosis treatment.

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