[Congressional Record Volume 160, Number 76 (Tuesday, May 20, 2014)]
[House]
[Page H4480]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
THE MODDERN CURES ACT
The SPEAKER pro tempore. The Chair recognizes the gentleman from
Pennsylvania (Mr. Thompson) for 5 minutes.
Mr. THOMPSON of Pennsylvania. Mr. Speaker, today, I rise as a proud
cosponsor of H.R. 3116, the MODDERN Cures Act.
As most know, amyotrophic lateral sclerosis, or ALS, also known as
Lou Gehrig's disease, is a progressive, fatal neuromuscular disorder
that causes the loss of voluntary muscle control, often resulting in
paralysis.
As a former rehabilitation therapist and manager, I have witnessed
firsthand the devastating impact that this disease takes of individual
lives and family members.
The life expectancy after a diagnosis with ALS is an average of 2 to
5 years. Veterans are twice as likely to experience and to die from ALS
as the general public. What is even worse, Mr. Speaker, is there
remains no cure.
The MODDERN Cures Act would speed up the development of new and
better treatments for patients with chronic diseases and disabilities,
including ALS, by removing barriers to medical innovation.
The legislation encourages research on treatments which, quite
frankly, have been set aside in the lab, but hold promise for treating
ALS and other chronic diseases and disabilities.
Mr. Speaker, I encourage all my colleagues to support this important
piece of legislation.
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