[Congressional Record Volume 160, Number 37 (Wednesday, March 5, 2014)]
[House]
[Pages H2157-H2158]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
TUBEROUS SCLEROSIS COMPLEX RESEARCH
(Mr. FITZPATRICK asked and was given permission to address the House
for 1 minute and to revise and extend his remarks.)
Mr. FITZPATRICK. Madam Speaker, as a member of the Rare Disease
Congressional Caucus, I rise today in support of continued funding for
tuberous sclerosis complex research in the fiscal year 2015 Department
of Defense Appropriations Act.
TSC is a genetic condition that afflicts an estimated 50,000
Americans,
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causing tumors in the kidneys, lungs, liver, heart, eyes, skin, and
brain. Researchers have linked TSC to seizures, autism, and severe
intellectual disability.
Research on this condition is also having a notable impact on our
understanding of traumatic brain injury and other medical conditions,
like cancer and diabetes.
The TSC program at the Department of Defense is critical to our
continued understanding of this condition.
With me on the floor today, Mr. Speaker, is a beautiful little girl,
Stephanie from Pennsylvania, who has been diagnosed with TSC.
Her brave spirit brings light to the importance of this cause and
helps remind us of others living with this condition across the United
States.
It is crucial that we continue to band together as a community and a
legislative body to support this significant research initiative.
The SPEAKER pro tempore (Ms. Ros-Lehtinen). The Chair reminds Members
not to refer to persons on the floor as guests of the House.
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