[Congressional Record Volume 158, Number 92 (Monday, June 18, 2012)]
[Senate]
[Page S4250]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
POLYCYSTIC KIDNEY DISEASE AWARENESS WEEK
Ms. STABENOW. Mr. President, I ask unanimous consent that the Senate
proceed to S. Res. 495, submitted earlier today.
The PRESIDING OFFICER. The clerk will report the resolution by title.
The legislative clerk read as follows:
A resolution (S. Res. 495) designating the period beginning
on June 17, 2012, and ending on June 23, 2012, as
``Polycystic Kidney Disease Awareness Week,'' and raising
awareness and understanding of polycystic kidney disease and
the impact such disease has on patients.
There being no objection, the Senate proceeded to consider the
resolution.
Mr. KOHL. Mr. President, Senator Hatch and I submitted a resolution
to increase awareness of Polycystic Kidney Disease, PKD, a life-
threatening genetic illness.
PKD is the most common genetic illness, and over 600,000 people have
been diagnosed with PKD nationwide. There is no treatment or cure for
this devastating disease. Families and friends provide unwavering
support to their suffering loved ones.
But there is hope. The PKD Foundation has reported the discovery of
specific genes involved in the development of PKD, allowing for the
development of clinical trials.
While scientists continue researching to find new treatments and
cures for PKD, others are working to bring awareness. Every year, the
PKD Foundation holds an annual fundraising walk for PKD. In Wisconsin,
where over 11,000 patients are living with the disease, residents
gather across the state to take part in this very special walk.
To support these efforts, I propose that Congress increase public
awareness of the disease by designating the week of June 17 to 23 of
this year as ``National Polycystic Kidney Disease Awareness Week.'' We
will be taking a positive step toward finding a cure for this disease
by increasing awareness.
I trust that my colleagues will see how designating a week to this
disease will help those afflicted by polycystic kidney disease, and I
hope for my colleagues' full support of this important resolution.
Ms. STABENOW. I ask unanimous consent that the resolution be agreed
to, the preamble be agreed to, the motion to reconsider be laid on the
table, with no intervening action or debate, and that any statements be
printed in the Record as if read.
The PRESIDING OFFICER. Without objection, it is so ordered.
The resolution (S. Res. 495) was agreed to.
The preamble was agreed to.
The resolution, with its preamble, reads as follows:
S. Res. 495
Whereas polycystic kidney disease, known as ``PKD'', is a
life-threatening genetic disease, affecting newborns,
children, and adults regardless of sex, age, race, geography,
income, or ethnicity;
Whereas there are 2 forms of polycystic kidney disease,
autosomal dominant (ADPKD), and autosomal recessive (ARPKD),
a rare form frequently leading to early death;
Whereas polycystic kidney disease causes multiple cysts to
form on both kidneys (ranging in size from a pinhead to a
grapefruit), leading to an increase in kidney size and
weight;
Whereas polycystic kidney disease is a systemic disease
that causes damage to the kidneys and the cardiovascular,
endocrine, hepatic, and gastrointestinal systems;
Whereas patients with polycystic kidney disease often
experience no symptoms early in the disease, and many
patients do not realize they have polycystic kidney disease
until other organs are affected;
Whereas symptoms of polycystic kidney disease may include
high blood pressure, chronic pain in the back, sides or
abdomen, blood in the urine, urinary tract infection, heart
disease, and kidney stones;
Whereas polycystic kidney disease is the number 1 genetic
cause of kidney failure in the United States;
Whereas more than half of polycystic kidney disease
patients will reach kidney failure and require dialysis or a
kidney transplant to survive, thus placing an extra strain on
dialysis and kidney transplantation resources;
Whereas there is no treatment or cure for polycystic kidney
disease; and
Whereas there are thousands of volunteers nationwide
dedicated to expanding essential research, fostering public
awareness and understanding, educating patients and their
families about polycystic kidney disease to improve treatment
and care, providing appropriate moral support, and
encouraging people to become organ donors: Now, therefore, be
it
Resolved, That the Senate--
(1) designates the period beginning on June 17, 2012, and
ending on June 23, 2012, as ``Polycystic Kidney Disease
Awareness Week'';
(2) supports the goals and ideals of Polycystic Kidney
Disease Awareness Week, to raise public awareness and
understanding of polycystic kidney disease;
(3) recognizes the need for additional research to find
treatments and a cure for polycystic kidney disease; and
(4) encourages the people of the United States and
interested groups to support Polycystic Kidney Disease
Awareness Week through appropriate ceremonies and activities,
to promote public awareness of polycystic kidney disease, and
to foster understanding of the impact of such disease on
patients and their families.
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