[Congressional Record Volume 152, Number 37 (Wednesday, March 29, 2006)]
[House]
[Page H1201]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




                             GRACE PESHKUR

  (Mr. BISHOP of New York asked and was given permission to address the 
House for 1 minute.)
  Mr. BISHOP of New York. Mr. Speaker, I rise to recognize Grace 
Peshkur and her family on the occasion of her fourth birthday today. 
Grace is an extraordinary child who has endured a life of struggle, and 
yet she has persevered against a rare skin disease and genetic disorder 
called epidermolysis bullosa, or EB for short.
  Grace is an inspiration to many Long Island families who have rallied 
around her. She has helped raise awareness about EB, which I had never 
heard of before meeting Grace.
  Over 12,000 Americans like Grace are afflicted with EB. The symptoms 
are fragile skin, recurrent blisters and painful sores caused by minor 
rubbing and that can be aggravated by routine activities we take for 
granted, like eating, walking and even changing clothes.
  For Grace and her family, every day that goes by is another battle 
won. I admire the Peshkur family and over 12,000 other Americans 
afflicted with EB who fight this disease and are working to raise 
awareness, find better treatments and, ultimately, discover a cure.
  In lieu of a fourth birthday present for Grace, I encourage my 
colleagues to cosponsor H. Res. 335, which would raise awareness by 
creating an EB awareness week.
  Mr. Speaker, we can only imagine the difficulty that Grace and her 
family face on a daily basis, but we can do something about it. We can 
provide the hope and promise of a cure.

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