[Congressional Record Volume 152, Number 30 (Thursday, March 9, 2006)]
[Senate]
[Pages S1966-S1967]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]

      By Mr. COLEMAN (for himself, Mr. Reed, Mr. Talent, Mr. Lieberman, 
        Mr. Isakson, Ms. Landrieu, Mr. Cochran, Mr. Carper, Mr. 
        Bunning, Mrs. Lincoln, Ms. Murkowski, Mr. Lautenberg, and Mr. 
        Burns):
  S. 2393. A bill to amend the Public Health Service Act to advance 
medical research and treatments into pediatric cancers, ensure patients 
and families have access to the current treatments and information 
regarding pediatric cancers, establish a population-based national 
childhood cancer database, and promote public awareness of pediatric 
cancers; to the Committee on Health, Education, Labor, and Pensions.
  Mr. COLEMAN. Mr. President, I ask unanimous consent that the text of 
my legislation, the Conquer Childhood Cancer Act of 2006, be printed in 
the Record.
  There being no objection, the text of the bill was ordered to be 
printed in the Record, as follows:

                                S. 2393

       Be it enacted by the Senate and House of Representatives of 
     the United States of America in Congress assembled,

     SECTION 1. SHORT TITLE.

       This Act may be cited as the ``Conquer Childhood Cancer Act 
     of 2006''.

     SEC. 2. FINDINGS.

       Congress makes the following findings:
       (1) Cancer kills more children than any other disease.
       (2) Each year cancer kills more children between 1 and 20 
     years of age than asthma, diabetes, cystic fibrosis, and 
     AIDS, combined.
       (3) Every year, over 12,500 young people are diagnosed with 
     cancer.
       (4) Each year about 2,300 children and teenagers die from 
     cancer.
       (5) One in every 330 Americans develops cancer before age 
     20.
       (6) Some forms of childhood cancer have proven to be so 
     resistant that even in spite of the great research strides 
     made, most of those children die. Up to 75 percent of the 
     children with cancer can now be cured.
       (7) The causes of most childhood cancers are not yet known.
       (8) Childhood cancers are mostly those of the white blood 
     cells (leukemia's), brain, bone, the lymphatic system, and 
     tumors of the muscles, kidneys, and nervous system. Each of 
     these behaves differently, but all are characterized by an 
     uncontrolled proliferation of abnormal cells.
       (9) Eighty percent of the children who are diagnosed with 
     cancer have disease which has already spread to distant sites 
     in the body.
       (10) Ninety percent of children with a form of pediatric 
     cancer are treated at one of the more than 200 Children's 
     Oncology Group member institutions throughout the United 
     States

     SEC. 3. PURPOSES.

       It is the purpose of this Act to authorize appropriations 
     to--
       (1) encourage and expand the support for biomedical 
     research programs of the existing National Cancer Institute-
     designated multi-center national infrastructure for pediatric 
     cancer research;
       (2) establish a population-based national childhood cancer 
     database (the Children's Cancer Research Network) to evaluate 
     incidence trends of childhood cancers and to enable the 
     investigations of genetic epidemiology in order to identify 
     causes to aid in development of prevention strategies;
       (3) provide informational services to patients and families 
     affected by childhood cancer;
       (4) support the development, construction and operation of 
     a comprehensive online public information system on childhood 
     cancers and services available to families; and
       (5) establish a fellowship program in pediatric cancer 
     research to foster clinical and translational research career 
     development in pediatric oncologists in the early stages of 
     their career.

     SEC. 4. PEDIATRIC CANCER RESEARCH AND AWARENESS.

       Subpart 1 of part C of title IV of the Public Health 
     Service Act (42 U.S.C. 285 et seq.) is amended by adding at 
     the end thereof the following:

     ``SEC. 417E. PEDIATRIC CANCER RESEARCH AND AWARENESS.

       ``(a) Pediatric Cancer Research.--
       ``(1) Special programs of research excellence in pediatric 
     cancers.--The Director of NIH, acting through the National 
     Cancer Institute, shall establish special programs of 
     research excellence in the area of pediatric cancers. Such 
     programs shall demonstrate a balanced approach to research 
     cause, prognosis, prevention, diagnosis, and treatment of 
     pediatric cancers that foster translation of basic research 
     findings into innovative interventions applied to patients.
       ``(2) Fellowship of excellence in pediatric cancer 
     research.--The Secretary shall develop a grant mechanism for 
     the establishment, in cooperation with the National Cancer 
     Institute-supported pediatric cancer clinical trial groups, 
     of Research Fellowships in Pediatric Cancer to support 
     adequate numbers of pediatric focused clinical and 
     translational investigators thereby facilitating continuous 
     momentum of research excellence.
       ``(b) National Childhood Cancer Registry.--The Director of 
     NIH shall award a grant for the operation of a population-
     based national childhood cancer database, the Childhood 
     Cancer Research Network (CCRN), of the Children's Oncology 
     Group, in cooperation with the National Cancer Institute.

[[Page S1967]]

       ``(c) Public Awareness of Pediatric Cancers and Available 
     Treatments and Research.--The Secretary shall award a grants 
     to recognized childhood cancer professional and advocacy 
     organizations for the expansion and widespread implementation 
     of activities to raise public awareness of currently 
     available information, treatment, and research with the 
     intent to ensure access to best available therapies for 
     pediatric cancers.
       ``(d) Authorization of Appropriations.--There are 
     authorized to be appropriated to carry out this section, 
     $20,000,000 for each of fiscal years 2007 through 2011. Funds 
     appropriated under this section shall remain available until 
     expended.''.
  Mr. REED. Mr. President, I join my colleague, Senator Coleman, in 
introducing the Conquer Childhood Cancer Act. I would also like to 
recognize Senators Talent, Isakson, Cochran, Bunning, Murkowski, 
Lieberman, Carper, Landrieu, and Lautenberg who have all joined as 
original cosponsors of the bill.
  This bipartisan legislation seeks to achieve several important goals 
in our battle against childhood cancer. Specifically, it will expand 
support for pediatric cancer research, foster the career development of 
more pediatric oncologists, and provide essential information and 
support to help families deal with this devastating disease. Childhood 
cancer impacts thousands of children and their families each year. 
While we have made great steps in treating cancer, we have made 
relatively little progress in advancing our understanding of the most 
common forms of pediatric cancer. This legislation will help to provide 
resources to hopefully one day find a cure.
  Each year, more than 12,000 children are diagnosed with cancer, and 
more than 2,000 of them lose their courageous battle with the disease. 
Pediatric cancer not only takes a toll on the child, it affects the 
entire family--the parents, siblings, friends, and extended family all 
suffer when a child has cancer. I have had the honor of meeting one 
such family from Warwick, Rhode Island who has taken the pain and 
devastation of losing their young son to neuroblastoma, a very 
aggressive childhood cancer, and turned their tragedy into a message of 
hope. The Haight family is committed, in memory of their nine year old 
son Ben, to education, advocacy, and lending support to other families 
going through a similar struggle with pediatric cancer. I never had a 
chance to meet Ben Haight but his mother Nancy has told me of his 
tremendous strength and courage. Ben fought every day during his four 
and a half year battle with this disease and his tragic story 
highlights the importance of this legislation.
  It is my hope that the bill we are introducing today will help to 
step up our efforts with regard to childhood cancer so that one day 
Ben's story, and thousands of other children like him, will be one of 
survival. In Rhode Island alone, a dozen children each year succumb to 
various forms of childhood cancer. Each of these children had hopes, 
dreams, and desires that will never be fulfilled and one cannot 
quantify the impact each of these children could have had on their 
communities and on society as a whole. We need to be doing more to give 
these children a chance to grow up and reach their full potential.
  The Conquer Childhood Cancer Act will enhance federal efforts in the 
fight against childhood cancer and will also complement the incredible 
work of private organizations dedicated to the prevention and cure of 
pediatric cancer. I would like to commend the CureSearch National 
Childhood Cancer Foundation for its work in this area. CureSearch 
brings together academic and research institutions, medical 
professionals with expertise in pediatric cancer, and children and 
families afflicted with the disease, to form a national network 
committed to research, treatment, and cures for childhood cancer.
  Thank you, Mr. President. I look forward to working with my 
colleagues toward swift passage of this important legislation.
                                 ______