[Congressional Record Volume 151, Number 123 (Wednesday, September 28, 2005)]
[House]
[Page H8491]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
REAUTHORIZATION OF THE RYAN WHITE CARE ACT
The SPEAKER pro tempore. Under a previous order of the House, the
gentlewoman from the Virgin Islands (Mrs. Christensen) is recognized
for 5 minutes.
Mrs. CHRISTENSEN. Mr. Speaker, in 2 days, the Ryan White CARE Act
will expire, and though it will continue under its current
authorization, as this landmark and life-saving Act expires, it is
almost as though a light expires as well, a light of life and hope for
the hundreds of thousands of Americans who have depended upon it.
We all know how disproportionately the HIV/AIDS epidemic has, and
continues to, affect the African American community. In fact, since the
beginning of this epidemic, African Americans have been hardest hit.
This is not only due to adverse lifestyles but also largely due to the
poor level of services, lack of insurance and the intractable poverty
where too many people of color are trapped.
As shocking as the statistics are one year, they get worse the
following year.
Nearly half of all people living with HIV and AIDS in the United
States are African American, and the AIDS case rate for African
Americans is 9.5 times that of whites.
About six in 10 children to HIV-infected mothers are African
American.
Sixty-five percent of the AIDS cases among young people, 13 to 19
years of age, are in African Americans.
AIDS is the leading cause of death for African American women, 24 to
34 years of age.
This epidemic creates generation gaps in black families, leaving
children to be reared by grandparents or other guardians, and the
startling number of AIDS cases among teenagers indicates that this
epidemic will undermine the very future of the African American
community and thus undermine our Nation.
In the African American community, this is a state of emergency and
requires an emergency response, not this lack of attention and
lackadaisical approach that we are receiving from the leadership. We
should not be presiding over the expiration of this Act, which has been
a lifeline to countless individuals and their families. We should be
going beyond reauthorization, expanding it and ensuring that all of the
funding is there to meet the programmatic needs.
The Ryan White CARE Act was created to improve the quality and expand
access to comprehensive care for people living with HIV and AIDS and
their families. Because of the CARE Act, metropolitan regions, which
are heavily African American, those that are most severely affected by
HIV and AIDS receive funding to launch HIV prevention and support HIV/
AIDS care efforts.
The CARE Act also provides funding for AIDS Drug Assistance Programs;
early intervention services; capacity building and planning grants;
crucial services for women, infants, children, youth and their affected
family members; funding for AIDS Education and Training Centers; dental
reimbursement programs; and funding for special projects on innovative
models of HIV care and service delivery, among other services.
As a physician who has treated people living with HIV and AIDS, I
know well how critical these services, especially access to medications
that slow the progression of HIV to AIDS, are to improve the quality of
life of those with AIDS, are to the health and well-being of and the
care of people living with it.
The CARE Act, though, is particularly important to the community that
is hit the hardest, year after year, the African American community.
About half of all Ryan White CARE Act clients are African American.
More than eight in 10 clients at the Title IV clinics who receive
important medical care, case management, child care and other services,
are people of color, the majority of whom are African American women,
children, youth and families.
We must recognize that when the Ryan White CARE Act was created and
passed, the face of the HIV/AIDS epidemic, the unmet needs of those
living with HIV disease, and the medical management of HIV and AIDS
were much different than they are today.
Furthermore, great strides in medical technology have slowed the
progression from HIV to AIDS, allowing people with HIV disease to live
longer, healthier lives. The CARE Act should be authorized in a manner
that allows it to fully respond to the health and health care needs of
those most at risk for, or those who currently are, living with HIV and
AIDS.
Because of this, any funding less than $3.1 billion is simply not
acceptable. That is equivalent to what we spend every month in the war
in Iraq.
What it costs to make the Republican tax cuts permanent for 1 year is
more than 10 times the amount needed to help ensure that a child born
to an HIV-positive mother has a chance at life.
One might be moved to ask why this crisis, which has taken so many
lives, ruining so many families and having such a detrimental social
and economic impact on our communities is being responded to in such an
inadequate manner, if one can say it is being responded to at all?
It is not the absence of urgent need. The numbers are there. Neither
could it be due to lack of resources. We have seen this administration
in times bankroll solutions to others and more expensive crises without
hesitation. The reauthorization of the Ryan White CARE Act and adequate
funding of this and all of the other health care programs that would
improve the health of the poor, the rural or people of color, are not
all that happening for one reason, the absence of political will.
Mr. Speaker, I do not want us to lose sight of the fact that this Act
gets its name from a brave little boy who was not only a pioneer but an
inspiration. I did not know Ryan, but I do know his mother, Jeanne, and
so on her behalf and on behalf of the patients I have served, and all
of those infected with HIV or who have AIDS, their families, as well as
all of the dedicated care providers, I ask that we not let this lapse
in our moral responsibility be prolonged.
Let us do the work we are entrusted to do and reauthorize and
modernize an even stronger, better Ryan White CARE Act.
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