[Congressional Record Volume 149, Number 133 (Thursday, September 25, 2003)]
[Senate]
[Page S12024]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]




                NATIONAL CYSTIC FIBROSIS AWARENESS WEEK

  Mr. DeWINE. Mr. President, I ask unanimous consent that the Senate 
proceed to the immediate consideration of calendar 290, S. Res. 98.
  The PRESIDING OFFICER. The clerk will report the resolution by title.
  The legislative clerk read as follows:

       A resolution (S. Res. 98) expressing the sense of the 
     Senate that the President should designate the week of 
     October 12, 2003, through October 18, 2003, as ``National 
     Cystic Fibrosis Awareness Week''.

  There being no objection, the Senate proceeded to consider the 
resolution which was reported from the Committee on the Judiciary, with 
an amendment, as follows:

       [Omit the part in black brackets].

                               S. Res. 98

       Whereas cystic fibrosis, characterized by digestive 
     disorders and chronic lung infections, is a fatal lung 
     disease;
       Whereas cystic fibrosis is one of the most common fatal 
     genetic diseases in the United States and one for which there 
     is no known cure;
       Whereas more than 10,000,000 Americans are unknowing 
     carriers of the cystic fibrosis gene;
       Whereas 1 out of every 3,500 babies born in the United 
     States is born with cystic fibrosis;
       Whereas approximately 30,000 people in the United States, 
     many of whom are children, have cystic fibrosis;
       Whereas the average life expectancy of an individual with 
     cystic fibrosis is 33 years;
       Whereas prompt, aggressive treatment of the symptoms of 
     cystic fibrosis can extend the lives of those who have this 
     disease;
       Whereas recent advances in cystic fibrosis research have 
     produced promising leads in gene, protein, and drug therapies 
     beneficial to persons afflicted with the disease;
       Whereas this innovative research is progressing faster and 
     is being conducted more aggressively than ever before, due in 
     part to the establishment of a model clinical trials network 
     by the Cystic Fibrosis Foundation; and
       Whereas education of the public on cystic fibrosis, 
     including the symptoms of the disease, increases knowledge 
     and understanding of cystic fibrosis and promotes early 
     diagnoses: Now, therefore, be it
       Resolved,

     SECTION 1. NATIONAL CYSTIC FIBROSIS AWARENESS.

       (a) Sense of the Senate.--It is the sense of the Senate 
     that the President should designate the week of October 12, 
     2003, through October 18, 2003, as ``National Cystic Fibrosis 
     Awareness Week''.
       (b) Proclamation.--The Senate requests the President to 
     issue a proclamation--
       (1) designating the week of October 12, 2003 through 
     October 18, 2003, as ``National Cystic Fibrosis Awareness 
     Week''; and
       (2) calling on the people of the United States to observe 
     the week with appropriate ceremonies and activities.
       [(c) Additional Action.--The Senate commits to increasing 
     the quality of life for individuals with cystic fibrosis by 
     promoting public knowledge and understanding in a manner that 
     will result in earlier diagnoses, more fund-raising efforts 
     for research, and increased levels of support for those with 
     cystic fibrosis and their families.]

  Mr. DeWINE. Mr. President, I ask unanimous consent the amendment to 
the resolution be agreed to, the resolution, as amended, be agreed to, 
the preamble be agreed to, and the motion to reconsider be laid upon 
the table with no intervening action or debate.
  The PRESIDING OFFICER. Without objection, it is so ordered.
  The committee amendment was agreed to.
  The resolution (S. Res. 98), as amended, was agreed to.
  The preamble was agreed to.
  The resolution, with its preamble, reads as follows:

                               S. Res. 98

       Whereas cystic fibrosis, characterized by digestive 
     disorders and chronic lung infections, is a fatal lung 
     disease;
       Whereas cystic fibrosis is one of the most common fatal 
     genetic diseases in the United States and one for which there 
     is no known cure;
       Whereas more than 10,000,000 Americans are unknowing 
     carriers of the cystic fibrosis gene;
       Whereas 1 out of every 3,500 babies born in the United 
     States is born with cystic fibrosis;
       Whereas approximately 30,000 people in the United States, 
     many of whom are children, have cystic fibrosis;
       Whereas the average life expectancy of an individual with 
     cystic fibrosis is 33 years;
       Whereas prompt, aggressive treatment of the symptoms of 
     cystic fibrosis can extend the lives of those who have this 
     disease;
       Whereas recent advances in cystic fibrosis research have 
     produced promising leads in gene, protein, and drug therapies 
     beneficial to persons afflicted with the disease;
       Whereas this innovative research is progressing faster and 
     is being conducted more aggressively than ever before, due in 
     part to the establishment of a model clinical trials network 
     by the Cystic Fibrosis Foundation; and
       Whereas education of the public on cystic fibrosis, 
     including the symptoms of the disease, increases knowledge 
     and understanding of cystic fibrosis and promotes early 
     diagnoses: Now, therefore, be it
       Resolved,

     SECTION 1. NATIONAL CYSTIC FIBROSIS AWARENESS.

       (a) Sense of the Senate.--It is the sense of the Senate 
     that the President should designate the week of October 12, 
     2003, through October 18, 2003, as ``National Cystic Fibrosis 
     Awareness Week''.
       (b) Proclamation.--The Senate requests the President to 
     issue a proclamation--
       (1) designating the week of October 12, 2003 through 
     October 18, 2003, as ``National Cystic Fibrosis Awareness 
     Week''; and
       (2) calling on the people of the United States to observe 
     the week with appropriate ceremonies and activities.

                          ____________________