[Congressional Record Volume 147, Number 149 (Thursday, November 1, 2001)]
[House]
[Page H7700]
From the Congressional Record Online through the Government Publishing Office [www.gpo.gov]
URGING MEMBERS TO SUPPORT FUNDRAISERS AND WALK-A-THONS TO RAISE MONEY
FOR AUTISM RESEARCH
The SPEAKER pro tempore. Under a previous order of the House, the
gentlewoman from Florida (Ms. Ros-Lehtinen) is recognized for 5
minutes.
Ms. ROS-LEHTINEN. Mr. Speaker, last night while most American
children donned their costumes to celebrate Halloween, Bonnie and
Willis Flick, the children pictured here, were able to go trick-or-
treating only as a result of much preparation by their mother,
Patience.
Bonnie and Willis are superheroes, not because they were dressed as
wizards, but because of the efforts that they make each and every day
in trying to fit into our world. It is difficult for Bonnie and Willis
to make sense of our overwhelming and challenging environment because
they have a neurological disease called autism.
Autism affects the development of the brain, especially in the areas
of social interaction and communication skills. As a result, it is
difficult for Bonnie and Willis to play with friends or to form
relationships that most 11- and 13-year-olds have.
Autism affects one out of every 500 individuals, and it is a spectrum
disorder, which means that it manifests itself in different ways.
For example, Bonnie can read and is able to go to a special school
called the Learning Experience in Miami. She is a more high-functioning
autistic child. But her brother, Willis, on the other hand, is mostly
nonverbal. Talking for him is in small, almost guttural sounds that
come as a result of hard work. Expressing emotions such as joy, anger,
and frustration are extremely difficult for Willis.
However, Bonnie and Willis are a part of our world, not a world
apart, as this tee shirt reads. This is a tee shirt that we will be
wearing as part of the Flick family team this Saturday when we walk for
more autism research.
Each day Bonnie and Willis continue to work hard to fit into our
confusing world. They have been blessed with wonderful teachers who
have a great deal of patience, and today Willis can dress himself. He
has learned to eat, and he has learned to eat with a fork for the first
time. It may not seem like a big accomplishment for most of us, but for
a child with autism, that is a monumental task.
For the first time, Bonnie allows her hair to be brushed and no
longer involuntarily darts away from her caregivers.
Bonnie and Willis are fortunate and blessed children. They receive
professional assistance and education to help optimize their potential
and learning capabilities. But many autistic children are not as lucky.
Many children do not have access to health care and to therapy that
they so desperately need.
While the national rates of children being diagnosed with autism are
increasing dramatically, there remains no known cure nor cause for
autism. Mr. Speaker, we need to continue to raise research funding for
autism to find treatments and preventions for this disability.
The National Alliance for Autism Research, NAAR, is an organization
whose mission it is to fund, promote, and support biomedical research
for autism spectrum disorder. To fulfill its commitment, every year
throughout our Nation the organization hosts walk-a-thons to help raise
vital research funds.
This Saturday, I, along with many others, will be participating in
Walk Far for NAAR, which will be held in my congressional district at
Crandon Park in Key Biscayne.
I congratulate the chairs of this year's walk, Robert and Patricia
Cambo and Rain Vega, for their hard work in putting together this
year's event. I also encourage my colleagues to remember the other
Bonnie and Willises in their districts, and on their behalf to help
promote awareness on autism so that each day we will be a step closer
in banishing this debilitating disorder.
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